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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Apr 8, 2020
Date Accepted: Aug 13, 2020

The final, peer-reviewed published version of this preprint can be found here:

Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: Applied Tutorial

Martin CL, Kramer-Kostecka EN, Linde JA, Friend S, Zuroski VR, Fulkerson JA

Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: Applied Tutorial

J Med Internet Res 2020;22(9):e19217

DOI: 10.2196/19217

PMID: 32965234

PMCID: 7542408

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Developing and Implementing Ethically Responsible Secure Websites for Behavioral Research: An Applied Tutorial

  • Christie L Martin; 
  • Eydie N Kramer-Kostecka; 
  • Jennifer A Linde; 
  • Sarah Friend; 
  • Vanessa R Zuroski; 
  • Jayne A Fulkerson

ABSTRACT

Behavioral researchers are increasingly using interactive digital platforms, either as standalone or supplementary intervention tools, to facilitate positive changes in research participants’ health habits. Research–oriented interactive websites optimally offer a variety of participatory mediums, such as blogs, user–driven content, or health activities. Owing to the multidirectional features of interactive websites and considerations of Health Insurance Portability and Accountability Act (HIPAA) for research participants, it is paramount that these platforms be designed to protect participants’ privacy and to minimize loss of anonymity and confidentiality. Authentication (ie, digital verification of one’s identity) of interactive sites is one viable solution to these concerns. Researchers should follow vetted procedures when implementing ethically responsible authenticated websites. However, practical guidelines for ethical website design and implementation are currently lacking in the literature. In this tutorial, through the presentation of a case study conducted at a large research university, we provide specific considerations that research teams should address to uphold ethical best practices in all phases of website development. Through iterative and practical recommendations, we detail lessons learned from collaborations with information technology and legal support teams. Although the intricacies of our applied tutorial may require adaptations based on each institutions’ technological capacity, we are certain that the core ethical stipulations are universal and thus useful to researchers creating ethically responsible interactive websites.


 Citation

Please cite as:

Martin CL, Kramer-Kostecka EN, Linde JA, Friend S, Zuroski VR, Fulkerson JA

Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: Applied Tutorial

J Med Internet Res 2020;22(9):e19217

DOI: 10.2196/19217

PMID: 32965234

PMCID: 7542408

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