Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Apr 8, 2020
Date Accepted: Aug 13, 2020
Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: An Applied Tutorial
ABSTRACT
Behavioral researchers are increasingly using interactive digital platforms, either as standalone or supplementary intervention tools, to facilitate positive changes in research participants’ health habits. Research–oriented interactive websites optimally offer a variety of participatory mediums, such as blogs, user–driven content, or health activities. Owing to the multidirectional features of interactive websites and considerations of Health Insurance Portability and Accountability Act (HIPAA) for research participants, it is paramount that these platforms be designed to protect participants’ privacy and to minimize loss of anonymity and confidentiality. Authentication (ie, digital verification of one’s identity) of interactive sites is one viable solution to these concerns. Researchers should follow vetted procedures when implementing ethically responsible authenticated websites. However, practical guidelines for ethical website design and implementation are currently lacking in the literature. In this tutorial, through the presentation of a case study conducted at a large research university, we provide specific considerations that research teams should address to uphold ethical best practices in all phases of website development. Through iterative and practical recommendations, we detail lessons learned from collaborations with information technology and legal support teams. Although the intricacies of our applied tutorial may require adaptations based on each institutions’ technological capacity, we are certain that the core ethical stipulations are universal and thus useful to researchers creating ethically responsible interactive websites.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.