Accepted for/Published in: JMIR Medical Education
Date Submitted: Mar 20, 2019
Open Peer Review Period: Mar 26, 2019 - May 21, 2019
Date Accepted: Mar 19, 2020
Date Submitted to PubMed: Oct 30, 2020
(closed for review but you can still tweet)
Has the YouTube Generation Crossed The Line: A Prospective Study Evaluating the Identification of Informed Consent to post patient videos on social media
ABSTRACT
Background:
the American Medical Association regulations state that any clinical image taken for public education forms part of the patients’ records. Hence a patient’s informed consent is required to collect, share and distribute his or her image. Patients must be informed of the intended use of the clinical image and the intended audience as part of the informed consent Objectives: to determine whether a random selection of videos containing footage of real patients on YouTube identify the presence of informed consent to post the video on social media Design: A prospective evaluation of the first 125 videos on YouTube, with the search criteria “central line insertion” by 2 separate researchers Setting: Video content on YouTube Participants: Posters of footage containing real patient procedures Interventions: All posters were contacted to clarify the status of consent to both film and disseminate the video on social media. A period of 2 months was provided to respond to initial contact. Furthermore, YouTube were contacted to clarify company policy Primary and Secondary Outcome Measures: The primary outcome was to determine if videos on YouTube were amended to include details of consent at 2 months post-contact. The secondary outcome was a response to the initial email at 2 months
Results:
143 videos were compiled. 41 videos contained footage of patient procedures. 41/41 videos were of indeterminate consent status. 23/41 contained identifiable patient footage. 3/41 posters responded to initial contact. 0/41 amended the video to document consent status. Response from YouTube is pending Conclusion: There are videos on social media, containing footage of patients undergoing medical procedures, without any verification of informed consent. While this study investigated a small sample of available videos, the problem appears more ubiquitous, and should be studied more extensively
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