Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
YouTube Videos as Educational Resources for Seizure Clusters and Treatment Options: A Review of Available Resources
ABSTRACT
Background:
YouTube videos are easily accessible resources for patients and families researching seizure clusters and rescue medications on the internet; however, social media can spread misinformation. The lack of a clear definition for seizure clusters further complicates this issue.
Objective:
To assess and validate YouTube videos intended as educational and instructional resources for seizure clusters and treatment options since the approval of intranasal benzodiazepine rescue medications (2019).
Methods:
We searched YouTube for 10 specific terms related to seizure clusters and treatment options and analyzed videos from the first 20 results for each. Videos were rated via 3 criteria: accurate seizure cluster definition, appropriate FDA-approved treatment recommendation, and correct visual demonstration of rescue product use. Only videos published since 2019 were included.
Results:
Seizure clusters and the trade names for intranasal midazolam (Nayzilam) and intranasal diazepam (Valtoco) generated the highest number of videos meeting criteria; remaining searches garnered <8 videos each. Less than half of the videos assessed provided accurate descriptions of seizure clusters, recommended and discussed proper rescue therapies, and demonstrated use of those products.
Conclusions:
Finding appropriate YouTube videos on seizure cluster management is difficult. While several videos appeared to be effective for patient and provider education, applying less specific terminology returned unrelated or unhelpful videos. Healthcare institutions and pharmaceutical companies should produce brief, helpful videos of each rescue therapy and arm patients with search terms to facilitate better navigation of educational and instructional resources. Given the potentially life-threatening nature of seizure clusters and the paucity of videos that accurately describe them, there is a need for videos from reputable healthcare sources to provide pertinent and readily understood information. Clinical Trial: N/A
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.