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Accepted for/Published in: JMIR Mental Health

Date Submitted: Nov 28, 2025
Open Peer Review Period: Nov 28, 2025 - Jan 23, 2026
Date Accepted: Apr 28, 2026
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Governing Ethical Tensions in Youth Digital Mental Health Research

Ørjasæter KB, Rennick-Egglestone S, Børresen KÃ, Moe CF, Leiler A, Sigurdardottir HDI, Colado VMP, Vogelsang M, TrovÃ¥g J, Nambazira T, Valderaune V, Skjesol I, Ng F, Ness O, Slade M

Governing Ethical Tensions in Youth Digital Mental Health Research

JMIR Ment Health 2026;13:e88622

DOI: 10.2196/88622

PMID: 42378626

PMCID: 13318201

Governing Ethical Tensions in Youth DIgital Mental Health Research

  • Kristin Berre Ørjasæter; 
  • Stefan Rennick-Egglestone; 
  • Kristin Øksendal Børresen; 
  • Cathrine Fredriksen Moe; 
  • Anna Leiler; 
  • Helga Dis-Isfold Sigurdardottir; 
  • Victor Manuel Pèrez Colado; 
  • Malle Vogelsang; 
  • Jone TrovÃ¥g; 
  • Teddy Nambazira; 
  • Victor Valderaune; 
  • Ingunn Skjesol; 
  • Fiona Ng; 
  • Ottar Ness; 
  • Mike Slade

ABSTRACT

Mental health research increasingly pursues societal impact and addresses urgent challenges, which places researchers at the intersection of two powerful forces: the drive for innovation, and the imperative of ethical responsibility. Drawing on the NEON Young Norway Study, a research project co-developed with youth, clinical, and technology partners, this paper explores four ethical tensions in youth mental health research. Four tensions appear broadly relevant across contexts: (1) informational rigor vs. methodological flexibility; (2) formal ethical standards vs. youth-friendly communication; (3) safeguarding against harm vs. enabling youth participation; and (4) pseudonymization vs. authentic storytelling. These tensions create a significant gap between scholarly ethical frameworks and practical guidance for youth mental health research. We argue that responsible research must collaboratively develop and codify ethical norms in youth mental health research that shape and influence governance. Critically, ethics should function not as an innovation barrier but as a dynamic compass for responsible, inclusive, and impactful research. When ethical frameworks inadvertently exclude populations in vulnerable situations, knowledge gaps emerge that may perpetuate harm. Thus, ethical practice must actively enable safe and equitable inclusion, not merely prevent it.


 Citation

Please cite as:

Ørjasæter KB, Rennick-Egglestone S, Børresen KÃ, Moe CF, Leiler A, Sigurdardottir HDI, Colado VMP, Vogelsang M, TrovÃ¥g J, Nambazira T, Valderaune V, Skjesol I, Ng F, Ness O, Slade M

Governing Ethical Tensions in Youth Digital Mental Health Research

JMIR Ment Health 2026;13:e88622

DOI: 10.2196/88622

PMID: 42378626

PMCID: 13318201

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