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Accepted for/Published in: JMIR Formative Research

Date Submitted: Jul 23, 2025
Open Peer Review Period: Aug 6, 2025 - Oct 1, 2025
Date Accepted: Dec 17, 2025
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study

Thodis A, Dang TH, Wickramasinghe N, Ulapane N, Cooper C, Dow B, Mortimer D, Nguyen T, Xiao LD, Antoniades J, Gilbert AS, Enticott J, Gurgone M, Varghese M, Loganathan S, Brijnath B

Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study

JMIR Form Res 2026;10:e81128

DOI: 10.2196/81128

PMID: 41774914

PMCID: 12996899

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Co-designed Multilingual Website in Ethnically Diverse Family Carers of People with Dementia: Preliminary Evaluation Study

  • Antonia Thodis; 
  • Thu Ha Dang; 
  • Nilmini Wickramasinghe; 
  • Nalika Ulapane; 
  • Claudia Cooper; 
  • Briony Dow; 
  • Duncan Mortimer; 
  • Tuan Nguyen; 
  • Lily Dongxia Xiao; 
  • Josefine Antoniades; 
  • Andrew Simon Gilbert; 
  • Joanne Enticott; 
  • Mary Gurgone; 
  • Mathew Varghese; 
  • Santosh Loganathan; 
  • Bianca Brijnath

ABSTRACT

Background:

Technology can deliver culturally and linguistically appropriate resources to support ethnically diverse dementia family carers (hereafter carers). However, carers’ research involvement in the development and evaluation of such resources is limited.

Objective:

A preliminary evaluation of Draw-Care, a co-designed multilingual web-based dementia resource, was conducted with carers.

Methods:

We used a mixed-methods approach comprising online surveys, ‘think-aloud’ website navigation sessions, Instant Data Analysis, descriptive and thematic analysis, and Hotjar analytics.

Results:

Thirty carers participated. Overall, the Draw-Care resource was acceptable, culturally responsive, engaging, and usable. Issues identified with and proposed improvements were the virtual helper, rating scale, feedback feature, and translation accuracy of the text.

Conclusions:

This novel evaluation of a web-based dementia resource undertaken with carers emphasizes the importance of inclusive, accessible, culturally sensitive, engaging, and useful content and design, and the key revisions needed before a randomized clinical trial to test Draw-Care's effectiveness.


 Citation

Please cite as:

Thodis A, Dang TH, Wickramasinghe N, Ulapane N, Cooper C, Dow B, Mortimer D, Nguyen T, Xiao LD, Antoniades J, Gilbert AS, Enticott J, Gurgone M, Varghese M, Loganathan S, Brijnath B

Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study

JMIR Form Res 2026;10:e81128

DOI: 10.2196/81128

PMID: 41774914

PMCID: 12996899

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