Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: May 22, 2025
Date Accepted: May 26, 2025
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Rectifying Genocidal Data Stewardship: Commentary on Schmit et al. (2025)
ABSTRACT
Access to and the ability to work with Tribal data can vastly improve the ability of Tribal Nations to support their citizens’ health and wellbeing. In this commentary we expand on previous calls for state and federal public health agencies to share data by default with Tribes. Previous work has described the legal and ethical lay of the land concerning public health data sharing while underscoring the importance of respect for Tribal sovereignty. In this commentary, we expand on this argument by proposing additional ways in which data can benefit Tribes and critical steps for Tribes to fully benefit from Tribal data. Specifically, we argue for: 1) renewed interest and investment in Tribal data science education, 2) proactive data practices, laws, and policies that support long-term health and wellbeing, and 3) the federal government honoring its trust responsibility to support Tribal data resources.
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Copyright
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