JMIR Publications

ABSTRACT

Background:

Charitable organizations that serve the pediatric oncology community play a crucial role in disseminating quality information that can inform and support people living with childhood cancer, those that work in the field, and others who make key decisions or policies. These registered organizations can be challenging to locate as the internet is flux with information and resources of varying quality, misinformation, and disinformation. There remains limited understanding of the knowledge mobilization landscape of these organizations in Canada.

Objective:

This study will provide an overview of the pediatric oncology charitable organizational landscape and describe their knowledge mobilization efforts related to dissemination, highlighting existing strengths, gaps, and novel opportunities to strengthen and unite efforts.

Methods:

A novel environmental scan methodology will be employed to search government and non-profit and registered charity organizations’ databases. Independent reviewers will screen the websites of eligible organizations. Extracted data will be descriptively analyzed, geographically sorted, and presented in tabular form with accompanying narrative.

Results:

We anticipate that preliminary results will be available by Summer 2025.

Conclusions:

The environmental scan will explicate each step of our method to allow others opportunity to garner understanding from our learnings. Findings will be disseminated to the broader community via social media, directly to the pediatric oncology network in Canada, and globally, through summaries, infographics, presentations, and traditional academic outputs. By doing so, the pediatric oncology community will have information pertinent to navigating these resources and further steps can be devised to bolster the knowledge mobilization capacity in Canada.