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Accepted for/Published in: JMIR Public Health and Surveillance

Date Submitted: Mar 1, 2025
Date Accepted: Jun 5, 2025

The final, peer-reviewed published version of this preprint can be found here:

Implementing Social Media Strategies in Community-Partnered HIV Research: Practical Considerations From 3 Ongoing Studies

Rosenberg-Carlson EP, Loeb TB, Hernandez RG, Lee JJ, Ahonkhai AA, Perkins JM, Lin C, Lee SJ, Hurt S, Johnsen L, Hamilton AB

Implementing Social Media Strategies in Community-Partnered HIV Research: Practical Considerations From 3 Ongoing Studies

JMIR Public Health Surveill 2025;11:e73318

DOI: 10.2196/73318

PMID: 40929715

PMCID: 12461161

Implementing social media strategies in community-partnered HIV research: practical considerations from three ongoing studies

  • Elena Patrice Rosenberg-Carlson; 
  • Tamra B Loeb; 
  • Raquel G Hernandez; 
  • Jane J Lee; 
  • Aima A Ahonkhai; 
  • Jessica M Perkins; 
  • Chunqing Lin; 
  • Sung-Jae Lee; 
  • Sharon Hurt; 
  • Luke Johnsen; 
  • Alison B Hamilton

ABSTRACT

Background:

In recent years, social media has emerged as a pivotal tool in implementation science efforts to address the HIV epidemic. Engaging community partners is essential to ensure successful and equitable implementation of social media strategies. There is a notable lack of scholarship addressing the operational considerations for studies using social media strategies in community-partnered HIV research. This article aims to bridge this gap by consolidating field notes and practical considerations derived from three ongoing Ending the HIV Epidemic (EHE) Center for AIDS Research/AIDS Research Center supplement projects.

Objective:

This article intends to inform the design, planning, and implementation of operationally effective community-partnered social media strategies in HIV research and practice, ultimately contributing to improved outcomes across the HIV prevention and care continua.

Methods:

Supported by the UCLA Rapid, Rigorous, Relevant (3R) Implementation Science Hub, the three EHE projects convened to form the Community-Partnered Social Media Campaigns working group. The working group used the Consolidated Framework for Implementation Research to help identify and organize key barriers and facilitators of relevance to implementation of the projects’ social media strategies. Given the high degree of interrelatedness across reported factors, the working group thematically synthesized the content into five practical considerations for use of community-partnered social media strategies in HIV research.

Results:

The practical considerations identified by the CPSMC working group include: 1) the power and pitfalls of social media platforms (i.e., opportunities and challenges inherent to social media platforms that may affect use of social media strategies in HIV research); 2) messengers and messages matter (i.e., ensuring the appropriateness, acceptability, and quality of social media messengers and content); 3) the significance of the sociopolitical environment (i.e., characterizing the sociopolitical environment surrounding HIV and its potential impact on implementing social media strategies to reach priority populations) ; 4) investing in academic-community partnerships (i.e., cultivating positive and productive academic-community partnerships to support implementation of social media strategies in HIV research); and 5) the alignment of the institutional environment and research approach (i.e., assessing and working to address features of institutional environments that may impact implementation of social media strategies in community-partnered HIV research).

Conclusions:

As use of social media in HIV research and practice continues to grow, the practical considerations presented in this article can help studies anticipate factors that may impact implementation of community-partnered social media strategies and take early action to mitigate potential challenges. By understanding and addressing the unique challenges and opportunities of social media in community-partnered HIV research, we can leverage these platforms to accelerate progress toward ending the HIV epidemic. Clinical Trial: N/A


 Citation

Please cite as:

Rosenberg-Carlson EP, Loeb TB, Hernandez RG, Lee JJ, Ahonkhai AA, Perkins JM, Lin C, Lee SJ, Hurt S, Johnsen L, Hamilton AB

Implementing Social Media Strategies in Community-Partnered HIV Research: Practical Considerations From 3 Ongoing Studies

JMIR Public Health Surveill 2025;11:e73318

DOI: 10.2196/73318

PMID: 40929715

PMCID: 12461161

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© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.