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Ethical principles pertaining to care of people with dementia: A qualitative thematic synthesis of legal documents
Qualitative Study Protocol
Daniel Sperling;
Frederik Schou-Juul;
Sigurd Lauridsen;
Muhammad Asaduzzaman;
Seda Guney;
Dominika Kohanová;
Vaitsa Giannouli;
Corinna Porteri;
Rodrigo Serrat;
Ana Isabel Morais
ABSTRACT
With dementia's rising global prevalence, ensuring ethical legally supported care is increasingly critical. This protocol describes a study that explores and examines the ethical principles of dementia care and their address by ethical frameworks as they are integrated and discussed in legal documents across different jurisdictions on national, European and International levels. The study applies a cross-country qualitative thematic synthesis (QTS) to explore how ethical principles like autonomy, dignity, and beneficence are embedded, discussed and evaluated in such documents, covering 15 countries within a European COST Action initiative. By categorizing and analyzing these principles, the study highlights the translation of ethical norms into enforceable laws and seeks to identify gaps and variances in ethical application, thereby offering analytical themes and insights concerning the interaction between ethical and legal norms. Using the QTS method combined with a systematic legal review framework, the study captures the nuanced role of ethics in dementia-related legislation, contributing valuable insights for policymakers, legal practitioners, and healthcare providers.
Citation
Please cite as:
Sperling D, Schou-Juul F, Lauridsen S, Asaduzzaman M, Guney S, Kohanová D, Giannouli V, Porteri C, Serrat R, Morais AI
Ethical Principles Pertaining to the Care of People With Dementia: Protocol for a Qualitative Thematic Synthesis of Legal Documents