Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Formative Research

Date Submitted: Jan 10, 2025
Date Accepted: May 11, 2025

The final, peer-reviewed published version of this preprint can be found here:

Assessing the Psychosocial Impact of Expressive Writing on Adults With Spinal Cord Injury: Qualitative Study

Xie SM, McKenna M, Veach K, Williams S, Jones MG, Kamp EV, Green S, Edwards L, Kirklin K, Jones BA, Yuen HK

Assessing the Psychosocial Impact of Expressive Writing on Adults With Spinal Cord Injury: Qualitative Study

JMIR Form Res 2025;9:e71162

DOI: 10.2196/71162

PMID: 40587781

PMCID: 12234395

Assessing the Psychosocial Impact of Expressive Writing on Adults with Spinal Cord Injury: A Qualitative Study

  • Shelly M. Xie; 
  • Molly McKenna; 
  • Kendall Veach; 
  • Sydney Williams; 
  • Mary Grace Jones; 
  • Elizabeth Vander Kamp; 
  • Salaam Green; 
  • Lauren Edwards; 
  • Kimberly Kirklin; 
  • Benjamin A. Jones; 
  • Hon K. Yuen

ABSTRACT

Background:

Spinal cord injury (SCI) results in significant physical, emotional, and social consequences, necessitating effective support programs. Expressive writing has shown potential in facilitating emotional processing and adaptation in various populations.

Objective:

The purpose of this study was to explore the experience of adults with SCI who completed a 10-week coach-guided videoconferencing expressive writing program

Methods:

By adopting a qualitative research design with a phenomenological approach, this study explored the impact of a 10-week virtual coach-guided expressive writing program on 24 adults with SCI. Qualitative data were collected through post-program semi-structured interviews and analyzed using thematic analysis to identify themes related to participants’ experiences and program impact. The analysis was conducted without any pre-set theoretical framework of reference.

Results:

Qualitative analysis revealed three overarching themes: supportive environment, cathartic experience, and acceptance of life. Participants reported experiencing a sense of community, therapeutic and insightful emotions, reduced stress, a positive shift in life perspective, and increased self-forgiveness. Participants reported profound positive changes and expressed the desire to continue writing beyond the program.

Conclusions:

The coach-guided expressive writing program enhanced emotional processing, coping mechanisms, and overall well-being in individuals with SCI, demonstrating its potential as a valuable rehabilitative intervention. Clinical Trial: The trial was registered at ClinicalTrials.gov (NCT04721717).


 Citation

Please cite as:

Xie SM, McKenna M, Veach K, Williams S, Jones MG, Kamp EV, Green S, Edwards L, Kirklin K, Jones BA, Yuen HK

Assessing the Psychosocial Impact of Expressive Writing on Adults With Spinal Cord Injury: Qualitative Study

JMIR Form Res 2025;9:e71162

DOI: 10.2196/71162

PMID: 40587781

PMCID: 12234395

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.