Accepted for/Published in: JMIR Formative Research
Date Submitted: Jan 10, 2025
Date Accepted: May 11, 2025
Assessing the Psychosocial Impact of Expressive Writing on Adults with Spinal Cord Injury: A Qualitative Study
ABSTRACT
Background:
Spinal cord injury (SCI) results in significant physical, emotional, and social consequences, necessitating effective support programs. Expressive writing has shown potential in facilitating emotional processing and adaptation in various populations.
Objective:
The purpose of this study was to explore the experience of adults with SCI who completed a 10-week coach-guided videoconferencing expressive writing program
Methods:
By adopting a qualitative research design with a phenomenological approach, this study explored the impact of a 10-week virtual coach-guided expressive writing program on 24 adults with SCI. Qualitative data were collected through post-program semi-structured interviews and analyzed using thematic analysis to identify themes related to participants’ experiences and program impact. The analysis was conducted without any pre-set theoretical framework of reference.
Results:
Qualitative analysis revealed three overarching themes: supportive environment, cathartic experience, and acceptance of life. Participants reported experiencing a sense of community, therapeutic and insightful emotions, reduced stress, a positive shift in life perspective, and increased self-forgiveness. Participants reported profound positive changes and expressed the desire to continue writing beyond the program.
Conclusions:
The coach-guided expressive writing program enhanced emotional processing, coping mechanisms, and overall well-being in individuals with SCI, demonstrating its potential as a valuable rehabilitative intervention. Clinical Trial: The trial was registered at ClinicalTrials.gov (NCT04721717).
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© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.