JMIR Publications

ABSTRACT

Background:

Palliative care enhances dignity and quality of life for patients with serious illnesses by managing distressing symptoms and supporting families. However, inadequate awareness and misconceptions often hinder patients and their families from accessing these services. Understanding of public perspectives on palliative and hospice care can facilitate the development of targeted educational resources and awareness campaigns. As social media becomes an important source of health information, analyzing such publicly available online sources can yield valuable insights into perceptions of palliative and hospice care.

Objective:

This study analyzed public perspectives posted on a popular social media platform in South Korea, to understand perceptions, challenges, needs, and sentiments related to palliative and hospice care.

Methods:

Data were collected from Naver Knowledge iN, a popular online public forum in South Korea, encompassing 34,501 texts posted between 2002 and 2024. After applying inclusion and exclusion criteria, 9147 relevant perspectives were analyzed. Contextualized topic modeling was used to identify themes, and the optimal model was selected based on coherence, diversity scores, and expert feedback. In addition, multi-class sentiment analysis using a fine-tuned KoBERT model classified sentiments into six categories. The multi-class sentiment model’s performance was evaluated using accuracy, precision, recall, and F1-score.

Results:

Social media discussions on palliative and hospice care have increased steadily over time. Topic modeling identified nine themes, with “ethical and legal concerns” and “medical care in hospitals” peaking in recent years, suggesting growing public interest in these areas. “Emotional and psychological support” emerged as the predominant theme, reflecting a significant need for psychosocial assistance among patients and their families. Sentiment analysis revealed that “sadness,” “anxiety,” and “neutral” were common emotions across many topics. Notably, themes such as “emotional and psychological support,” “disease treatment outcomes and prognosis,” “medical care in hospitals,” “financial issues,” and “symptom management” were predominantly associated with “sadness,” while “administrative and volunteer services,” “ethical and legal concerns,” and “nutrition management” were more closely linked with “anxiety.”

Conclusions:

This study highlights public concerns about palliative and hospice care in South Korea, including ethical dilemmas, caregiving burden, and emotional distress. Findings underscore the need for communication strategies that address informational, emotional, and psychological needs. Culturally sensitive, interactive communication tools, such as AI-powered chatbots and public education campaigns, may help dispel misconceptions and promote timely, informed decisions about palliative and hospice care.