Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Formative Research

Date Submitted: Nov 28, 2024
Date Accepted: May 16, 2025

The final, peer-reviewed published version of this preprint can be found here:

Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study

Sukums F, Ngowi B, Chaula R, Weiszhar KL, Kalinga A, Ivanov O, Prazeres da Costa C, Hoerauf A, Sahay S, Noormahomed EV, Debrah LB, Sikasunge C, Ngowi H, Winkler AS

Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study

JMIR Form Res 2025;9:e69411

DOI: 10.2196/69411

PMID: 41129781

PMCID: 12548969

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Experiences of health research data sharing among researchers in Sub-Saharan Africa: a cross-sectional study

  • Felix Sukums; 
  • Bernard Ngowi; 
  • Rebecca Chaula; 
  • Kim L. Weiszhar; 
  • Akili Kalinga; 
  • Olena Ivanov; 
  • Clarissa Prazeres da Costa; 
  • Achim Hoerauf; 
  • Sundeep Sahay; 
  • Emilia Virginia Noormahomed; 
  • Linda B. Debrah; 
  • Chummy Sikasunge; 
  • Helena Ngowi; 
  • Andrea S. Winkler

ABSTRACT

Background:

Digital platforms play a vital role in improving the availability and access to health research outputs and enhancing the engagement of policymakers and practitioners in the research processes. Despite its potential, it needs to be explored how digital platforms are utilised to manage and share health research datasets and publications for translating research findings among health networks or institutions in Sub-Saharan Africa (SSA).

Objective:

To explore the experiences of sharing research data using digital platforms among researchers of three large research and innovation networks of SSA and affiliated institutions.

Methods:

This cross-sectional study explored the experiences of sharing research data using digital platforms among researchers of three large research and innovation networks of SSA and affiliated institutions. A total of 160 respondents filled in a self-administered online questionnaire using Google Forms. After data cleaning, the survey data was analysed using descriptive and inferential statistics.

Results:

Most respondents (56.9%, n=91 used electronic data collection tools to collect research data. Almost half (n=79, 53.0%) of the respondents revealed that they have a digital research data management platform; 102 (63.8%) and 98 (61.3) (46.3%) shared research datasets and research findings with the research community through different channels, respectively. Furthermore, most respondents shared their research datasets and research outputs through institutional data repositories (26.1%), scientific conferences (76.9%) and journal articles (68.8%). The study identified parameters such as sex, professional category (health professional, ICT and data managers) and the role (researcher or student) influencing health research data sharing within the community. According to Cramer’s V test, the results show that the roles of the individual have the strongest association with the sharing research dataset, followed by years of experience in research, then sex and profession. Additionally, the logistic regression shows that the probability of females were less likely to share their research datasets compared to males. Data managers and ICT exchanged datasets less frequently in the professional group, and the researcher’s role was statistically significant in sharing research datasets.

Conclusions:

This study demonstrates that most researchers share research datasets and outputs through various channels. It was further found that digital platforms were essential in managing and sharing research datasets and publications since more than half (53.0%) of the respondents have and use digital platforms. In addition, the study identified factors that influenced researchers' practices of sharing research datasets and publications. Clinical Trial: Not applicable


 Citation

Please cite as:

Sukums F, Ngowi B, Chaula R, Weiszhar KL, Kalinga A, Ivanov O, Prazeres da Costa C, Hoerauf A, Sahay S, Noormahomed EV, Debrah LB, Sikasunge C, Ngowi H, Winkler AS

Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study

JMIR Form Res 2025;9:e69411

DOI: 10.2196/69411

PMID: 41129781

PMCID: 12548969

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.