Accepted for/Published in: JMIR Formative Research
Date Submitted: Nov 28, 2024
Date Accepted: May 16, 2025
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Experiences of health research data sharing among researchers in Sub-Saharan Africa: a cross-sectional study
ABSTRACT
Background:
Digital platforms play a vital role in improving the availability and access to health research outputs and enhancing the engagement of policymakers and practitioners in the research processes. Despite its potential, it needs to be explored how digital platforms are utilised to manage and share health research datasets and publications for translating research findings among health networks or institutions in Sub-Saharan Africa (SSA).
Objective:
To explore the experiences of sharing research data using digital platforms among researchers of three large research and innovation networks of SSA and affiliated institutions.
Methods:
This cross-sectional study explored the experiences of sharing research data using digital platforms among researchers of three large research and innovation networks of SSA and affiliated institutions. A total of 160 respondents filled in a self-administered online questionnaire using Google Forms. After data cleaning, the survey data was analysed using descriptive and inferential statistics.
Results:
Most respondents (56.9%, n=91 used electronic data collection tools to collect research data. Almost half (n=79, 53.0%) of the respondents revealed that they have a digital research data management platform; 102 (63.8%) and 98 (61.3) (46.3%) shared research datasets and research findings with the research community through different channels, respectively. Furthermore, most respondents shared their research datasets and research outputs through institutional data repositories (26.1%), scientific conferences (76.9%) and journal articles (68.8%). The study identified parameters such as sex, professional category (health professional, ICT and data managers) and the role (researcher or student) influencing health research data sharing within the community. According to Cramer’s V test, the results show that the roles of the individual have the strongest association with the sharing research dataset, followed by years of experience in research, then sex and profession. Additionally, the logistic regression shows that the probability of females were less likely to share their research datasets compared to males. Data managers and ICT exchanged datasets less frequently in the professional group, and the researcher’s role was statistically significant in sharing research datasets.
Conclusions:
This study demonstrates that most researchers share research datasets and outputs through various channels. It was further found that digital platforms were essential in managing and sharing research datasets and publications since more than half (53.0%) of the respondents have and use digital platforms. In addition, the study identified factors that influenced researchers' practices of sharing research datasets and publications. Clinical Trial: Not applicable
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