Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Sep 16, 2024
Open Peer Review Period: Sep 18, 2024 - Nov 13, 2024
Date Accepted: Jun 23, 2025
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Systematic review of digital self-management interventions in dementia care: Exploring the impact of wearable technology, smart homes, and mobile applications on patient outcomes
ABSTRACT
Background:
The dementia landscape has evolved significantly, with earlier diagnoses, better understanding of prevention (e.g. modifiable factors), and new treatments. Emerging digital technologies (e.g. wearables, smart home technologies and apps) offer novel self-management opportunities, but critical knowledge gaps remain regarding their holistic integration into the care needs and preferences of people with dementia. Broader gaps also exist in intervention design, adaptation, and implementation, including effectiveness, study quality, and accessibility.
Objective:
This study aims to collate and appraise current literature on digital technologies, such as wearables, smart home technologies and apps, optimised to enhance self-management, reduce dementia-associated behaviours, and improve the quality of life for people with dementia. The review includes information on study design, intervention characteristics, evaluated outcomes, accessibility, and overall study quality.
Methods:
We conducted a ten-year search across nine databases using terms related to dementia, quality of life, associated behaviours, self-management, and digital technologies. Studies were appraised based on design, hardware, and purpose. Outcomes were mapped using the Nursing Outcomes Classification (NOC) and needs benchmarked using NICE Quality Standard (QS184). Accessibility was assessed by availability, cost, and ease of use. Study quality was evaluated using the Mixed Methods Appraisal Tool (MMAT), Critical Appraisal Skills Programme (CASP), and a custom characterisation table.
Results:
Our search yielded 835 unique articles, with 24 meeting inclusion criteria. Interventions included 13 wearables, 7 smart home technologies and 19 apps, primarily for people with dementia and their carers. Mapping to Nursing Outcomes Classification (NOC) showed common outcomes: neurocognitive (n=24), self-care measures (n=17), and health behavioural (n=13). Needs benchmarking revealed common addressed needs, such as managing distress (n=15) and supporting carers (n=15). Despite the use of widely available technologies (e.g. activity monitors, healthcare wearables and digital prompters), accessibility was poor due to complex configurations and support needs. Overall, study quality was good to excellent, with six high-quality randomized controlled trials and excellent qualitative studies.
Conclusions:
Research on digital technologies for dementia self-management demonstrates significant benefits, particularly with off-the-shelf devices and flexible mobile apps that offer person-centred outcomes. Nevertheless, the literature also highlights critical weaknesses, such as limited participant diversity (e.g. atypical dementias, minority groups) and the absence of high-quality research in key outcomes (e.g., symptom status, self-control). To address these issues, innovative approaches must be developed to enhance accessibility and usability, focusing on complex configurations, training, and support mechanisms.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.