Accepted for/Published in: JMIR Formative Research
Date Submitted: Aug 6, 2024
Open Peer Review Period: Aug 6, 2024 - Oct 1, 2024
Date Accepted: Dec 15, 2024
(closed for review but you can still tweet)
Improving the utility, safety and ethical use of a passive mood tracking application for people with bipolar disorder using co-production: a qualitative study
ABSTRACT
Background:
Co-production with users of new digital technology such as passive mood monitoring is likely to improve its utility, safety and successful implementation by improved design and consideration of how such technology fits with their daily lives. Mood monitoring interventions are commonly used by people with bipolar disorder (BD) and are a promising potential for digitization using novel technological methods.
Objective:
This study aims to explore how a passive behavioural monitoring platform RADAR – would meet the needs of people with BD by specifically considering purpose and function, diversity of need, personal preference, essential components and potential risks, harms and mitigation strategies through an iterative co-production process.
Methods:
17 people with BD were recruited via national charities and we conducted 3 online focus groups to take part in an iterative co-production process in line with responsible research and innovation principles and consideration of clinical challenges associated with BD. Data was analysed thematically.
Results:
Focus groups were transcribed and analysed using thematic analysis. 6 themes were identified: 1: purpose of using the app, 2: desired features, 3: when to use the app, 4: risks of using the app, 5: sharing with family and friends, 6: sharing with health care professionals.
Conclusions:
People with BD who are interested in utilising passive technology to mood monitor wish to do so for a wide variety of purposes, identifying a number of preferences and potential risks. Principally people with BD wished to use this novel technology to aid them to self-manage their BD with greater insight and better understanding of potential triggers. We discuss key features which may aid this functionality and purpose including crisis plans and sharing with others.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.