Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Cancer

Date Submitted: Aug 1, 2024
Date Accepted: May 12, 2025

The final, peer-reviewed published version of this preprint can be found here:

Companionship and Sharing Create Social Connections of an Online Community-Based Intervention for Patients with Cancer Receiving Outpatient Care: Pilot Study

HE Y, Pang Y, Liu Y, Li Z, Wang Y, Zhang Y, Su Z, Song L, He S, Wang B, Tang L

Companionship and Sharing Create Social Connections of an Online Community-Based Intervention for Patients with Cancer Receiving Outpatient Care: Pilot Study

JMIR Cancer 2025;11:e64977

DOI: 10.2196/64977

PMID: 40774327

PMCID: 12331361

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Companionship and sharing create social connections: Phase 2 trial of a virtual community-based intervention for outpatient cancer patients

  • YI HE; 
  • Ying Pang; 
  • Ying Liu; 
  • Zimeng Li; 
  • Yan Wang; 
  • Yening Zhang; 
  • Zhongge Su; 
  • Lili Song; 
  • Shuangzhi He; 
  • Bingmei Wang; 
  • Lili Tang

ABSTRACT

Background:

Virtual community, as a platform providing social connections, has received research attention in the medical field. However, there is currently no virtual community tailored for outpatient cancer patients. This study presents preliminary data on a customized virtual community designed to offer companionship and sharing for outpatient cancer patients.

Objective:

This study aims to assess the feasibility and initial effectiveness of a newly developed virtual community application in improving the quality of life (QOL) among cancer patients.

Methods:

A phase 2 intervention-only design was implemented to evaluate the acceptance, compliance, and preliminary efficacy of a virtual community for outpatient cancer patients. The study involved cancer patients participating in a 4-week virtual community support intervention through a mobile app. Patients completed a QOL questionnaire at baseline, 2 weeks, and 4 weeks to assess primary outcomes. Task engagement, task completion rates, and daily community logins were also monitored to evaluate intervention feasibility.

Results:

Baseline assessments were conducted on 30 patients, with 25 patients assessed at T1 and 22 at T2. The average daily login rate was 60.37%, with daily participation and community activity completion rates reaching 42.25% and 22.38%, respectively. Patients actively engaging in community activities showed significant improvements in global health status (QL) (P=0.004), emotional function (EF) (P=0.035), and constipation (CO) (P=0.005) after 4 weeks compared to less active patients.

Conclusions:

The virtual community intervention, emphasizing companionship and sharing, proved feasible for enhancing the QOL among cancer patients. Future validation of its effectiveness will require well-designed randomized controlled trials. Continued optimization tailored to specific user groups will also be crucial for meeting the community's evolving needs.


 Citation

Please cite as:

HE Y, Pang Y, Liu Y, Li Z, Wang Y, Zhang Y, Su Z, Song L, He S, Wang B, Tang L

Companionship and Sharing Create Social Connections of an Online Community-Based Intervention for Patients with Cancer Receiving Outpatient Care: Pilot Study

JMIR Cancer 2025;11:e64977

DOI: 10.2196/64977

PMID: 40774327

PMCID: 12331361

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.