JMIR Publications

ABSTRACT

Background:

Transition from pediatric to adult healthcare marks a complex and pivotal process for adolescents and young adults (AYAs) with inflammatory bowel disease (IBD). This group requires support regarding disease self-management, skill development, and system navigation in preparation for transition. Evidence-based interventions are needed to promote optimal health and psychosocial outcomes for AYAs with IBD during this period.

Objective:

A qualitative study embedded within a randomized controlled trial (RCT) was conducted to evaluate the perceived impact of a biopsychosocial transition intervention on the transition experiences of AYAs, their views on the intervention, and recommendations for future care.

Methods:

This patient-oriented research study employed a qualitative descriptive design. Virtual semi-structured interviews were held with 21 AYAs with IBD (16-18 years) enrolled in the RCT (intervention arm n=11; control arm n=10). Interviews were audio-recorded, transcribed, and analyzed using an inductive approach to reflexive thematic analysis. Five members of a Youth Advisory Panel with lived experience of IBD collaborated throughout data analysis, interpretation, and the presentation of findings.

Results:

We constructed three themes through our analysis: 1) making meaning of transitions in care, 2) perceptions and impact of the biopsychosocial transition intervention, and 3) considerations for future transition care, including the importance of individualized support.

Conclusions:

Our findings illustrate the importance of relationships and the impact of a biopsychosocial intervention on AYAs’ confidence, knowledge, and self-management skills during transition. The results, which indicate the criticality of tailoring transition supports according to AYA preferences and characteristics, will be used to refine the biopsychosocial intervention before it can be scaled and spread. Clinical Trial: NCT05221281