Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Jun 1, 2024
Date Accepted: Mar 10, 2025
Effect of the Yonsei Parkinson’s Disease (Yon PDⓇ) application on the management of self-care in people with Parkinson’s disease: a randomized controlled study
ABSTRACT
Background:
As the percentage of the older population increases, the percentage of people with Parkinson’s disease (PD) also increases. People with PD experience a range of non-motor symptoms, including pain, constipation, dysphagia, sleep disturbances, and fatigue. Because PD is a chronic disease that requires lifelong management, people with PD need to improve their self-care.
Objective:
To examine the effectiveness of a mobile application on the management of self-care in people with PD.
Methods:
Design: A randomized controlled study Setting(s): Participants were recruited from the neurology outpatient clinic of S hospital in South Korea between October 2022 and February 2023. Participants: In total, 93 participants were included in the analysis. There were 41 and 52 participants in the intervention and control group, respectively.
Methods:
People with PD aged 50 years and older and able to use a smartphone were recruited from a tertiary hospital in South Korea. The intervention group received the Yon PD® mobile app, which monitors and records the non-motor symptoms of PD. The control group was asked to record their non-motor symptoms on a paper questionnaire. The intervention took place over 12 weeks, and the level of self-care was assessed in both groups at baseline, 6 weeks, and 12 weeks.
Results:
Although the general characteristics of the two groups were comparable, monitoring non-motor symptoms with the Yon PD® app effectively increased self-care maintenance and prevented a decrease in self-care monitoring. However, self-care management gradually decreased over the 12-week period in both groups. The intervention adherence rate reached 60.84% at 6 weeks but decreased to 41.87% by 12 weeks.
Conclusions:
Participants were able to improve the degree of self-care by monitoring their non-motor symptoms using the Yon PD® app. However, additional strategies that increase motivation and enjoyment are required to improve adherence. Clinical Trial: Clinical Research Information Service KCT006433. The first recruitment was conducted in October 2022.
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