Accepted for/Published in: JMIR Medical Informatics
Date Submitted: May 11, 2024
Date Accepted: Jul 21, 2024
Towards Better Semantic Interoperability: Evaluation and Analysis of Data Element Repositories in Medicine
ABSTRACT
Background:
Data element repositories facilitate high-quality medical data sharing by standardizing data and enhancing semantic interoperability. However, the application of repositories is confined to specific projects and institutions.
Objective:
This study aims to explore potential issues and promote broader application of data element repositories within the medical field by evaluating and analyzing typical repositories.
Methods:
Following the inclusion of 5 data element repositories through a literature review, a novel analysis framework consisting of 7 dimensions and 36 secondary indicators was constructed and utilized for evaluation and analysis.
Results:
The study’s results delineate the unique characteristics of different repositories and uncover specific issues in their construction. These issues include the absence of data reuse protocols and insufficient information regarding the application scenarios and efficacy of data elements. The repositories only fully comply with 45% of the principles for Findable and Reusable in the FAIR principle, while achieving a 90% compliance rate for Accessible and 67% for Interoperable.
Conclusions:
The recommendations proposed in this study address the issues to improve the construction and application of repositories, offering valuable insights to data managers, computer experts, and other pertinent stakeholders.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.