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Mandel H, Shah S, Bailey LC, Carton T, Chen Y, Esquenazi-Karonika S, Haendel M, Hornig M, Kaushal R, Oliveira CR, Perlowski AA, Pfaff E, Rao S, Razzaghi H, Seibert E, Thomas GL, Weiner MG, Thorpe LE, Divers J
Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative
Opportunities and Challenges in using Electronic Health Record Systems to Study Post-Acute Sequelae of SARS-CoV-2 Infection: Insights from the NIH RECOVER Initiative
Hannah Mandel;
Shruti Shah;
L Charles Bailey;
Thomas Carton;
Yu Chen;
Shari Esquenazi-Karonika;
Melissa Haendel;
Mady Hornig;
Rainu Kaushal;
Carlos R Oliveira;
Alice A Perlowski;
Emily Pfaff;
Suchitra Rao;
Hanieh Razzaghi;
Elle Seibert;
Gelise L Thomas;
Mark G Weiner;
Lorna E Thorpe;
Jasmin Divers
ABSTRACT
The utility and challenges of electronic health records (EHR) as data sources for clinical and epidemiologic research have been well described. However, several factors are important to consider when using EHR data to study novel, emerging, and multifaceted conditions such as Post-acute Sequelae of SARS-CoV-2 infection (PASC) or Long COVID. In this article, we present opportunities and challenges of using EHR data to improve our understanding of Long COVID, based on lessons learned from the NIH-funded RECOVER Initiative, and suggest steps to maximize the utility of EHR data when performing Long COVID research.
Citation
Please cite as:
Mandel H, Shah S, Bailey LC, Carton T, Chen Y, Esquenazi-Karonika S, Haendel M, Hornig M, Kaushal R, Oliveira CR, Perlowski AA, Pfaff E, Rao S, Razzaghi H, Seibert E, Thomas GL, Weiner MG, Thorpe LE, Divers J
Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative