Accepted for/Published in: JMIR Medical Informatics
Date Submitted: Apr 15, 2024
Date Accepted: Jul 2, 2024
The Danish CNS tumor awareness initiative hjernetegn.dk - a digital decision support tool: Design and implementation report
ABSTRACT
Background:
Childhood tumors in the central nervous system (CNS) have longer diagnostic delays than other pediatric tumors. Vague presenting symptoms pose a challenge in the diagnostic process; it has been indicated that patients and parents may be hesitant to seek help, furthermore healthcare professionals may lack awareness and knowledge about clinical presentation. To raise awareness the Danish CNS tumor awareness initiative hjernetegn.dk was launched.
Objective:
This study aimed to raise awareness and provide a decision support tool for healthcare professionals (HCPs) to reduce diagnostic delay in childhood CNS tumors. We present the design and digital impact of hjernetegn.dk.
Methods:
The study outlines the phases of planning, producing, and implementing the tool, which includes participatory co-creation workshops with stakeholders, designing the website and digital platforms, and implementing a press and media strategy. The digital impact of hjernetegn.dk was evaluated through website analytics and social media engagement.
Results:
hjernetegn.dk was launched in august 2023. Results after 6 months running, showed a high number of website visitors and engagement, with a plateau reached after the initial launch. The LinkedIn campaign and Google Search strategy also generated significant impressions and clicks.
Conclusions:
The study highlights the importance of interdisciplinary collaboration and ongoing community management for sustainability. The findings suggest that the initiative has been successful in raising awareness and providing a valuable tool for HCPs in diagnosing childhood CNS tumors.
Citation
Per the author's request the PDF is not available.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.