Accepted for/Published in: JMIR Infodemiology
Date Submitted: Mar 20, 2024
Date Accepted: Jan 5, 2025
Date Submitted to PubMed: Jan 5, 2025
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
YouTube as a source of information on celiac disease
ABSTRACT
Background:
YouTube is an increasingly used platform for medical information. However, the reliability and validity of health-related information on celiac disease (CD) on YouTube has not been determined. The aim of this study was to analyse the reliability and validity of CD-related YouTube videos.
Objective:
YouTube is an increasingly used platform for medical information. However, the reliability and validity of health-related information on celiac disease (CD) on YouTube has not been determined. The aim of this study was to analyse the reliability and validity of CD-related YouTube videos.
Methods:
On 15 November 2023, a search was performed on YouTube using the keyword "celiac disease". This search resulted in a selection of videos which were then reviewed by two separate evaluators for content, origin and specific features. The evaluators assessed the reliability and quality of these videos using a modified DISCERN score (mDISCERN), the Journal of the American Medical Association benchmark criteria score (JAMA), the usefulness score, video power ındex (VPİ) and the global quality scale score (GQS).
Results:
In the analysis of 120 initially screened CD videos, 85 met the criteria for inclusion in the study after certain videos were excluded based on pre-defined criteria. The videos provided by healthcare professionals had the highest reliability, quality and usefulness scores compared to non-healthcare professionals (p<0.001 in all scales). Video interaction parameters including the median number of views, views per day, likes, dislikes, comments and VPI demonstrated no significant difference between the two groups.
Conclusions:
It should be kept in mind that videos containing misinformation may lead to negative consequences by misinforming patients and their families through high interaction. Patients and their families will benefit from increased use of the YouTube platform by healthcare professionals.
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