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Hou S, Henry B, Drummond R, Forbes C, Mendonça K, Wright H, Rahamatullah I, Tutelman PR, Zwicker H, Stokoe M, Duong J, Drake EE, Erker C, Tacone MS, Sutherland L, Nathan P, Spavor M, Goddard K, Reynolds K, Schulte FSM
Co-Designing Priority Components of an mHealth Intervention to Enhance Follow-Up Care in Young Adult Survivors of Childhood Cancer and Health Care Providers: Qualitative Descriptive Study
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Co-designing priority components of an mHealth intervention to enhance follow-up care: a qualitative study with young adult survivors of childhood cancer and healthcare providers
Sharon Hou;
Brianna Henry;
Rachelle Drummond;
Caitlin Forbes;
Kyle Mendonça;
Holly Wright;
Iqra Rahamatullah;
Perri R. Tutelman;
Hailey Zwicker;
Mehak Stokoe;
Jenny Duong;
Emily E. Drake;
Craig Erker;
Michael S. Tacone;
Liam Sutherland;
Paul Nathan;
Maria Spavor;
Karen Goddard;
Kathleen Reynolds;
Fiona S. M. Schulte
ABSTRACT
Background:
Survivors of childhood cancer are at risk for medical, psychological, and social late effects. To screen for their risks, receipt of consistent, cancer-specific follow-up care is crucial. Yet, less than 50% of survivors attend their aftercare and only 35% of them recognize that they could have a serious health problem. The use of mobile health (mHealth) is a promising form of intervention to educate, connect, and empower survivors of childhood cancer on the importance of follow-up care.
Objective:
Use co-design to identify the priority components to include in an mHealth intervention with young adult (18 to 39 years old) survivors of childhood cancer and healthcare providers.
Methods:
This study employed patient-oriented research methods and gathered qualitative descriptive from survivors of childhood cancer and healthcare providers. Data collected was analyzed using reflexive thematic analysis and verified through member checking techniques via a virtual community engagement event.
Results:
We co-facilitated with patient partners 5 virtual focus groups with 22 survivors of childhood cancer (mean age = 29.19 years, SD = 4.78). We conducted telephone interviews with 7 healthcare providers. Over 95% (n = 21) of the survivors identified as White (78% n = 35) and reported residing from 5 provinces across Canada with 79% indicating that they live in an urban community. Participants identified five priority areas to be included in an mHealth intervention: (1): Connections; (2); Education and information; (3); engagement; (4): Personalization; (5) Resources.
Conclusions:
Results from the current study has provided the necessary foundation to progress in intervention development. The next step of this multi-phased project is to build an innovative and accessible mHealth intervention prototype based on the core components identified and grounded in an established conceptual framework for co-design of mHealth. Clinical Trial: n/a
Citation
Please cite as:
Hou S, Henry B, Drummond R, Forbes C, Mendonça K, Wright H, Rahamatullah I, Tutelman PR, Zwicker H, Stokoe M, Duong J, Drake EE, Erker C, Tacone MS, Sutherland L, Nathan P, Spavor M, Goddard K, Reynolds K, Schulte FSM
Co-Designing Priority Components of an mHealth Intervention to Enhance Follow-Up Care in Young Adult Survivors of Childhood Cancer and Health Care Providers: Qualitative Descriptive Study
