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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Dec 12, 2023
Date Accepted: Aug 21, 2024

The final, peer-reviewed published version of this preprint can be found here:

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

Brogdan J, de Haan Z, Gorban C, Hockey SJ, Hutcheon A, Iorfino F, Song Y, Scott E, Hickie IB, McKenna S

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

J Med Internet Res 2024;26:e55441

DOI: 10.2196/55441

PMID: 39423372

PMCID: 11530728

Enhancing research involvement of young people with lived expertise: Reflecting on experiences in digital mental health research

  • Josephine Brogdan; 
  • Zsofi de Haan; 
  • Carla Gorban; 
  • Samuel J Hockey; 
  • Alexis Hutcheon; 
  • Frank Iorfino; 
  • Yun Song; 
  • Elizabeth Scott; 
  • Ian B Hickie; 
  • Sarah McKenna

ABSTRACT

Given the rapid development of digital mental health technologies and a focus on connecting with youth, there is an urgent need to enhance the engagement of young people with lived expertise in research. Even so, youth are particularly affected by power imbalances and may receive limited compensation in academic settings, thus an emphasis on how research engagement not only improves the work, but can benefit young people themselves is required. Here, we report insights of five young people with lived expertise who have been employed as researchers at the University of Sydney’s Brain and Mind centre. As such, this team is uniquely placed to offer reflections from real-world experiences across multiple stages of research. This led to four key insights, including: 1) creating accepting work cultures; 2) providing diverse opportunities for involvement; 3) giving young people agency and flexibility around sharing lived experiences; and, 4) creating accommodating work environments for all researchers. We suggest that these insights can support more diverse ways of engaging young people and maximizing the value of participation for both researchers and young people themselves.


 Citation

Please cite as:

Brogdan J, de Haan Z, Gorban C, Hockey SJ, Hutcheon A, Iorfino F, Song Y, Scott E, Hickie IB, McKenna S

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

J Med Internet Res 2024;26:e55441

DOI: 10.2196/55441

PMID: 39423372

PMCID: 11530728

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