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Accepted for/Published in: JMIR Formative Research

Date Submitted: Nov 20, 2023
Date Accepted: Feb 26, 2024

The final, peer-reviewed published version of this preprint can be found here:

A Web-Based Intervention to Support the Mental Well-Being of Sexual and Gender Minority Young People: Mixed Methods Co-Design of Oneself

Brown KE, Lucassen MFG, Núñez-García A, Rimes KA, Wallace LM, Samra R

A Web-Based Intervention to Support the Mental Well-Being of Sexual and Gender Minority Young People: Mixed Methods Co-Design of Oneself

JMIR Form Res 2024;8:e54586

DOI: 10.2196/54586

PMID: 38772025

PMCID: 11150889

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Codesign of ‘Oneself’: An online intervention to support the mental wellbeing of sexual and gender minority young people in England.

  • Katherine E Brown; 
  • Mathijs F G Lucassen; 
  • Alicia Núñez-García; 
  • Katharine A Rimes; 
  • Louise M Wallace; 
  • Rajvinder Samra

ABSTRACT

Background:

Sexual and gender minority youth (SGMY) are known to be at greater risk of compromised mental health when compared with their heterosexual and cisgender peers. This is often considered to be due largely to an increased burden from stigma, discrimination, or victimisation resulting in the heightened experience of stress in their daily lives. Given increasing digital accessibility and a strong preference for support online amongst SGMY, digital interventions are a keyway to provide support to manage stress and maintain their wellbeing.

Objective:

This paper aims to explicate the codesign processes and underpinning logic of Oneself, a bespoke online intervention for SGMY.

Methods:

The research followed a six-stage process set out by Hagen and colleagues (Identify, Define, Position, Concept, Create, Use) incorporating: a systematic scoping review of existing evidence; focus groups with four stakeholder groups (i.e., SGMY, professionals who directly support SGMY, parents of SGMY, and UK public health service commissioners); a series of co-design workshops and online consultations with SGMY; the appointment of a digital developer; and young adult SGM contributors to create content that was grounded in genuine SGMY experiences.

Results:

Oneself features a welcome/home page that includes a free ‘accessible to all’ animation explaining the importance of using appropriate pronouns, and the opportunity to log-in to access further free content. Creating a user account provides an opportunity (for the user and the research team) to record engagement, assess users’ wellbeing and track progress through the available content. There are three sections of content focussed on the priority topics identified through co-design; 1. coming out and doing so safely, 2. managing school, including homophobic, biphobic or transphobic bullying or similar, and 3. dealing with parents and families, especially unsupportive family members, including parents/caregivers. The content focuses on identifying these as problems and potential solutions. There is also a section containing relaxation exercises, a section with links to other recommended support and resources, and a ‘downloads’ section with more detailed techniques and strategies for tackling mental health problems and improving wellbeing.

Conclusions:

This paper contributes to research by opening up the ‘black box’ of intervention development. It shows how Oneself is underpinned by a logic which can support future development/evaluation and included diverse co-designers. More interactive techniques to support wellbeing would be a beneficial addition in further development of Oneself. Further consideration of how being SGMY intersects with other aspects of one’s identity (such as ethnicity) would also be beneficial in future content development. Clinical Trial: N/A


 Citation

Please cite as:

Brown KE, Lucassen MFG, Núñez-García A, Rimes KA, Wallace LM, Samra R

A Web-Based Intervention to Support the Mental Well-Being of Sexual and Gender Minority Young People: Mixed Methods Co-Design of Oneself

JMIR Form Res 2024;8:e54586

DOI: 10.2196/54586

PMID: 38772025

PMCID: 11150889

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