Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Oct 26, 2023
Open Peer Review Period: Oct 26, 2023 - Dec 21, 2023
Date Accepted: May 27, 2024
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Enhancing patient understanding of laboratory test results: a systematic review of presentation formats and their impact on perception, decision, action, and memory
ABSTRACT
Background:
Direct access of patients to their electronic health records, including laboratory test results, has become increasingly common. Laboratory results can be challenging to interpret by patients, which may lead to anxiety, confusion, and unnecessary doctor consultations. Laboratory results can be presented in different formats, but there is limited evidence about the effect of presentation formats on patient outcomes.
Objective:
To synthesize the evidence on effective formats for presenting laboratory test results with a focus on patient outcomes, including affective perception, perceived magnitude, cognitive perception, perception of communication, decision, action, and memory.
Methods:
The search was conducted in three databases (PubMed, Web of Science, and EMBASE), until May 31st, 2023. We included quantitative, qualitative, and mixed methods articles describing or comparing formats for presenting diagnostic laboratory test results to patients. Two reviewers independently extracted and synthesized characteristics of the articles and presentation formats used. Quality of the included articles was assessed by two independent reviewers by using the Mixed Methods Appraisal Tool.
Results:
Eighteen studies were included, which were heterogeneous in terms of study design and primary outcomes used. Quality of the articles ranged from poor to excellent. Most studies (n = 16/18) used mock test results. The most frequently used presentation formats were numerical values with reference ranges (n = 12/18), horizontal line bars with colored blocks (n = 12/18), or a combination of horizontal line bars with numerical values (n = 8/18). All studies examined perception as a patient outcome, while action and memory were studied in one and three articles, respectively. In general, participants’ satisfaction and usability were highest when test results were presented using horizontal line bars with colored blocks. Adding reference ranges or personalized information (e.g. goal ranges) further increased participants’ perception. Additionally, horizontal line bars significantly decreased participants’ tendency to search for information or to contact their physician, compared to numerical values with reference ranges.
Conclusions:
In this review, we synthesized available evidence on effective presentation formats for laboratory test results. The use of horizontal line bars with reference ranges or personalized goal ranges increased participants’ cognitive perception and perception of communication, while decreasing participants’ tendency to contact their physician. Action and memory were less frequently studied, so no conclusion could be drawn about a single preferred format regarding these outcomes. Further research should focus on real-life settings, diverse presentation formats and patient outcomes. Eventually, the overarching objective is to facilitate the development of tools to effectively communicate laboratory test results to patients in clinical practice.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.