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Accepted for/Published in: JMIR Aging

Date Submitted: Oct 16, 2023
Date Accepted: Dec 6, 2023

The final, peer-reviewed published version of this preprint can be found here:

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

Garcia CN, Duran MC, Ramirez M

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

JMIR Aging 2024;7:e53671

DOI: 10.2196/53671

PMID: 38206663

PMCID: 10811572

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living with Dementia: A Qualitative Study

  • Celeste Naomi Garcia; 
  • Miriana C. Duran; 
  • Magaly Ramirez

ABSTRACT

In the United States, Latino caregivers providing care to individuals with dementia face unique challenges and an elevated risk of adverse health outcomes. Despite the increasing prevalence of Alzheimer's disease and related dementias among Latino adults, few evidence-based interventions are tailored to their cultural context. To address this gap, we examined the cultural adaptations required for the STAR-C virtual intervention, an evidence-based intervention that educates family caregivers to manage behavioral and psychological symptoms of dementia. While STAR-C has shown effectiveness, neither the original in-person nor the virtual intervention considered the distinct experiences of Latino caregivers, who often bring culturally significant values into caregiving interactions. The study objective was to test and refine the preliminary cultural adaptations of the STAR-C online training modules for Latino caregivers of people living with dementia. Through qualitative interviews with 15 Latino caregivers in Washington State, we identified key adaptations to enhance the cultural relevance of the online training modules. These adaptations primarily revolved around four main themes: the delivery of the STAR-C online training modules, comprehensive dementia education, simplified problem-solving strategies, and prioritizing caregiver well-being. The study's findings informed the development of culturally adapted STAR-C online training modules that aim to provide tailored support to Latino caregivers. While further research is needed to assess the efficacy of these adaptations, our work contributes to bridging the gap in dementia caregiving for Latino families, potentially reducing health disparities and enhancing healthcare services for this population.


 Citation

Please cite as:

Garcia CN, Duran MC, Ramirez M

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

JMIR Aging 2024;7:e53671

DOI: 10.2196/53671

PMID: 38206663

PMCID: 10811572

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