Accepted for/Published in: JMIR Formative Research
Date Submitted: Oct 4, 2023
Date Accepted: Feb 6, 2024
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Factors associated with perception of stigma among the parents of children with cleft lip and palate: A cross-sectional study
ABSTRACT
Background:
Parents of children with cleft lip and palate (CL/P) often face stigmatization, and the stigmatization they felt has a significant impact on the quality of their life and mental health. However, to date, there is a lack of comprehensive, multi-center empirical research on parents of children with CL/P in China, particularly those that employ large-scale samples.
Objective:
To identify the major factors that contribute to the perception of stigma experienced by parents of children with CL/P.
Methods:
A cross-sectional survey. Parents of children diagnosed with CL/P in 2 hospitals was selected by convenience sampling. Demographic, disease information, a Chinese Perception of stigma Questionnaire, the Center for Epidemiological Studies Depression Scale, and Social Anxiety Scale Life Scale were used in this study. Descriptive statistics, t-tests, and one-way analysis of variance were used to compare the differences between participants’ demographic information and stigma.
Results:
The mean scores for the dimensions of perception of stigma, depression, social anxiety was 22.914±9.172, 38.337±8.248, 21.644±6.408, respectively. The depression and anxiety was positive associated with discrimination, while “whether operation were performed” and “education background” were negatively associated variables. These four factors explained 23.50% of the total model variance.
Conclusions:
The mean scores for the dimensions of perception of stigma, depression, social anxiety was 22.914±9.172, 38.337±8.248, 21.644±6.408, respectively. The depression and anxiety was positive associated with discrimination, while “whether operation were performed” and “education background” were negatively associated variables. These four factors explained 23.50% of the total model variance.
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