Accepted for/Published in: JMIR Formative Research
Date Submitted: Aug 23, 2023
Date Accepted: Sep 4, 2024
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Methods for conducting a multi-mode survey of Medical Monitoring Project HIV care facility characteristics
ABSTRACT
Background:
Measuring the capacity of HIV medical facilities to deliver quality treatment and prevention care to people with HIV (PWH) is essential to the over 1 million Americans living with HIV and supports the federal efforts to end the HIV epidemic. To fill this gap and complement the ongoing Medical Monitoring Project (MMP)—which conducts annual surveys of PWH and periodic surveys of HIV care providers—the U.S. Centers for Disease Control and Prevention (CDC) and RTI International conducted the Medical Monitoring Project Facility Survey (MMPFS).
Objective:
To describe survey methods designed to achieve a high response rate from the 1,022 facilities providing care to PWH as part of the MMP—including creation of the frame of facilities to be surveyed; survey instrument development; data collection methods including development of multiple survey modes and phases of data collection, facility recruitment; response rates; and post-survey data processing, including non-response bias analysis, weighting, and imputation.
Methods:
CDC and RTI developed a sequential multi-mode data collection approach (paper, web, and phone), including an abbreviated nonresponse follow-up (NRFU) instrument and the collection of administrative data for all facilities for the MMPFS. Data were then analyzed to produce raw, imputed, and weighted datasets. Analyses included comparisons of responses to the full survey and NRFU survey.
Results:
The full MMPFS survey yielded 455 complete survey respondents and the NRFU survey yielded 59 complete survey responses, a combined response rate of 51%. A nonresponse bias analysis comparing the two surveys found a significant difference in the raw datasets for 4 of 34 categorical variables that were identical between the two surveys. Weighted and imputed datasets were then generated and compared. There was no significant difference between the two datasets for any variable.
Conclusions:
CDC and RTI’s MMPFS methodology proved to be a valuable means of collecting data from HIV care providers and providing estimates for critical factors related to the provision of healthcare for PWH. The combined response rate allowed CDC and RTI to generate facility-level estimates and an imputed dataset that can be linked to MMPFS patient data. The methods may be applied to other facility survey studies. Clinical Trial: N/A
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