Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Formative Research

Date Submitted: Jul 13, 2023
Date Accepted: Jan 11, 2024

The final, peer-reviewed published version of this preprint can be found here:

Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach

Blanchard M, Koller CN, Azevedo PM, Prétat T, Hügle T

Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach

JMIR Form Res 2024;8:e50832

DOI: 10.2196/50832

PMID: 38639986

PMCID: 11069091

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

From Patient Needs to Platform Design: Using Patient Preference to Guide the Development of a Fibromyalgia-like Post-COVID19 Syndrome Management App

  • Marc Blanchard; 
  • Cinja Nadana Koller; 
  • Pedro Ming Azevedo; 
  • Tiffany Prétat; 
  • Thomas Hügle

ABSTRACT

Background:

Post-viral fibromyalgia is a complex condition that presents significant challenges in terms of self-management. Digital health interventions have the potential to support patients in their self-management efforts. However, ensuring a widespread adoption and adherence to these interventions remains a key challenge. To address this gap, this study aimed to develop a patient-centered digital health management app for post-viral fibromyalgia patients. By incorporating patient preferences through surveys and usability testing, the study sought to enhance the usability and effectiveness of the app, ultimately improving patient outcomes and quality of life.

Objective:

To develop a patient-centered digital health self-management app for post-viral fibromyalgia patients using patient preference survey and usability testing.

Methods:

An exploratory study design was employed, involving patient preference surveys and usability testing, to guide the development of the digital health solution.

Results:

The analysis of patient preference surveys and usability testing revealed valuable insights, guiding the iterative development of the app. Participants expressed their expectations in terms of design, usability features and content, which allowed a tailored development of the solution according to the patients’ needs. Usability testing revealed the importance of the onboarding process.

Conclusions:

Patient preference surveys guided the development of a patient-centric digital health solution, while usability testing identified issues with the onboarding process, requiring further study to investigate the impact of the onboarding on patient adoption and ultimately enhance engagement and patient literacy.


 Citation

Please cite as:

Blanchard M, Koller CN, Azevedo PM, Prétat T, Hügle T

Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach

JMIR Form Res 2024;8:e50832

DOI: 10.2196/50832

PMID: 38639986

PMCID: 11069091

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.