Previously submitted to: JMIR Dermatology (no longer under consideration since Aug 07, 2023)
Date Submitted: Jun 30, 2023
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Managing epidermolysis bullosa in a resource poor environment
ABSTRACT
Background:
Epidermolysis bullosa is a global orphan genetic disease. EB treatments such as expensive dressings are often unavailable in resource poor environments.
Objective:
To identify treatments that can be used in resource poor areas to prolong life and improve the quality of life in EB.
Methods:
We searched Embase, Scopus and Cochrane between 2000 and 19th June 2023 to identify epidermolysis bullosa treatments.
Results:
Numerous treatments range from keeping wounds clean to newer gene therapies.
Conclusions:
There is anecdotal evidence that repurposed anti-inflammatory medications can be used in the management of EB in resource poor settings.
Citation
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Copyright
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