Accepted for/Published in: JMIR Research Protocols
Date Submitted: Jun 7, 2023
Date Accepted: Aug 24, 2023
Enhancing Trans-Sectoral Interdisciplinary Patient-Centred Care for Patients with Rare Cancers: Protocol for a Mixed Methods Process Evaluation
ABSTRACT
Background:
The multi-component programme Trans-sectoral personalised care concept for patients with rare cancers (TARGET) aims to optimise trans-sectoral cooperation and coordination of care to enhance patient involvement and the medical care coordination of patients with rare cancers.
Objective:
This process evaluation will contribute to answering questions about intervention fidelity and the implementation of the trans-sectoral communication as well as to identifying and describing intended and non-intended effects of the intervention and will also contribute to exploring barriers and facilitators of the implementation.
Methods:
Data collection will include questionnaires, document analyses, semi-structured interviews and structured observations and will cover different aspects of process evaluation. Qualitative data will be analysed using qualitative content analysis according to Mayring. The data will finally be combined using between-methods triangulation.
Results:
The project received the funding decision on 1 March 2022. The intervention phase and recruitment for the process evaluation started on 1 March 2023. At the time of protocol submission in June 2023, eight doctors from haematology/oncology practices were enrolled. Data collection has already started.
Conclusions:
The TARGET project is a complex intervention that is to be implemented in an equally complex healthcare context. The process evaluation will help to understand the influence of contextual factors and to assess the mechanisms of change. Clinical Trial: Main trial: ISRCTN registry identifier: ISRCTN16441179, registered October 10, 2022 (https://doi.org/10.1186/ISRCTN16441179)
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