Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: Journal of Participatory Medicine

Date Submitted: May 3, 2023
Open Peer Review Period: May 3, 2023 - Jun 28, 2023
Date Accepted: Nov 19, 2023
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Examining the Feasibility, Acceptability, and Effectiveness of Remote Training on Community-Based Participatory Research: Single-Arm Pre-Post Pilot Study

Fortuna K, Bohm A, Lebby S, Holden K, Agic B, Cosco T, Walker R

Examining the Feasibility, Acceptability, and Effectiveness of Remote Training on Community-Based Participatory Research: Single-Arm Pre-Post Pilot Study

J Particip Med 2024;16:e48707

DOI: 10.2196/48707

PMID: 38427414

PMCID: 10943423

The Feasibility, Acceptability, and Preliminary Effectiveness of the Partnership Academy: A Virtual Training in Community-Based Participatory Research

  • Karen Fortuna; 
  • Andrew Bohm; 
  • Stephanie Lebby; 
  • Kisha Holden; 
  • Branka Agic; 
  • Theodore Cosco; 
  • Robert Walker

ABSTRACT

Background:

Over the past decade, growing scientific evidence shows that community engagement in research produces more relevant research, increases uptake of research findings, and better clinical outcomes

Objective:

The purpose of this study was to assess the feasibility, acceptability, and preliminary effectiveness of a dyadic virtual training on community-based participatory research.

Methods:

Thirteen service users, peer support specialists, caregivers of people with mental health challenges, and scientists (basic science to implementation scientists) aged 18+ participated in a dyadic virtual training on community-based participatory research. Data were collected at baseline, 2-days, and 3-months.

Results:

The pilot study demonstrated that a three-month, dyadic virtual training on community-based participatory research (“Partnership Academy”) was experienced by service users, peer support specialists, caregivers of people with mental health challenges, and scientists as feasible and acceptable. Improvements were found in research engagement and the quality of partnership. A marked increase in distrust in the medical system was also found. Dyads submitted four grant applications and published one peer-reviewed journal at 3-month follow-up.

Conclusions:

This pre/post pilot study demonstrated it is possible to train dyadic groups of service users, peer support specialists, caregivers of people with mental health challenges, and scientists in community-based participatory research. These findings provide preliminary evidence that a three-month, dyadic virtual training on community-based participatory research (“Partnership Academy”) is feasible, acceptable, and is potentially associated with improvements in research engagement and the quality of partnership and output such as manuscripts and grant applications. Clinical Trial: N/A


 Citation

Please cite as:

Fortuna K, Bohm A, Lebby S, Holden K, Agic B, Cosco T, Walker R

Examining the Feasibility, Acceptability, and Effectiveness of Remote Training on Community-Based Participatory Research: Single-Arm Pre-Post Pilot Study

J Particip Med 2024;16:e48707

DOI: 10.2196/48707

PMID: 38427414

PMCID: 10943423

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.