Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Apr 5, 2023
Open Peer Review Period: Apr 5, 2023 - May 31, 2023
Date Accepted: Nov 29, 2023
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Adolescent and Parent Perspectives on Digital Phenotyping in Youth with Chronic Pain: A Survey Study
ABSTRACT
Background:
Digital phenotyping is a promising methodology for capturing moment-to-moment data that can inform individually adapted and timely interventions for youth with chronic pain.
Objective:
The current study aimed to investigate adolescent and parent endorsement, perceived utility, and concerns related to smartphone sensor data collection for digital phenotyping for clinical and research purposes in youth with chronic pain.
Methods:
Through multiple-choice and open-response survey questions, we assessed participant perspectives on passive data collection from the following nine embedded smartphone sensors: Accelerometer, Applications, Bluetooth, Text/Call Log, Keyboard, Voice, Light, Screen, and GPS.
Results:
Quantitative and qualitative analyses indicated that adolescents and parent endorsement and perceived utility of digital phenotyping varied by sensor, though participants generally endorsed the use of sensor-collected data, if a certain level of utility could be provided. All participants reported primary concerns related to privacy and accuracy and validity of data collected.
Conclusions:
Findings support the tailored use of digital phenotyping for this population and can can help refine this methodology toward an acceptable, feasible, and ethical implementation of real-time symptom monitoring for assessment and intervention in youth with chronic pain.
Citation
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Copyright
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