Accepted for/Published in: JMIR Human Factors
Date Submitted: Mar 27, 2023
Open Peer Review Period: Mar 25, 2023 - Apr 8, 2023
Date Accepted: Sep 26, 2023
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
The Ethical and Care impacts of implementing Digital Communication and Surveillance Technologies in the Home-setting: A Qualitative Inductive Study
ABSTRACT
Background:
Embedding communication and surveillance technology into the home healthcare setting has demonstrated the capacity for increased data efficiency, assumptions of convenience, and SMART solutions to pressing problems, such as caregiver shortages amid a rise in aging people. The race to develop and implement these technologies within homecare and public health nursing often leaves several ethical questions unanswered.
Objective:
To evaluate how increased communication and surveillance technology use in home health care delivery affected the human relationships between clients and caregivers and disrupted the intuitive artistry of caregiving.
Methods:
This study used qualitative inductive content analysis to analyze 1,260 written responses from home health caregivers.
Results:
This study presents this shadow side in three main themes: digital dependence vulnerability, moral distress, and interruptions to caregiving. This study highlights the consequences of technology developers and health systems leaders unintentionally ignoring the perspectives of caregivers who practice the intuitive artistry of providing care to other humans.
Conclusions:
This study presents this shadow side in three main themes: digital dependence vulnerability, moral distress, and interruptions to caregiving. This study highlights the consequences of technology developers and health systems leaders unintentionally ignoring the perspectives of caregivers who practice the intuitive artistry of providing care to other humans. Clinical Trial: The study was conducted according to ethical standards (World Medical Association, 2013)and was approved by the Swedish Ethical Review Authority (Dnr 2019-03263). The participants received written and oral information about the study and gave their written consent to participate
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.