Accepted for/Published in: JMIR Formative Research
Date Submitted: Mar 18, 2023
Date Accepted: Jul 28, 2023
Developing A User-Informed ADHD Website: A Qualitative Study Identifying Information Needs and Format Preferences of Adults with ADHD and Parents of Children with ADHD
ABSTRACT
Background:
Attention-deficit/hyperactivity disorder (ADHD) is a highly prevalent childhood and adult behavioral disorder. Increasingly, individuals search online for information about ADHD, particularly if they are trying to determine if they have the disorder and treatments for it.
Objective:
Although a great deal of information regarding ADHD is available online, some information is not based on scientific evidence or is difficult for stakeholders to understand. Determining gaps in access to accurate ADHD information and stakeholder interest in the type of information desired, is important in improving patient engagement with the healthcare system, but minimal research addresses these needs. This study aims to determine the information needs and formatting needs of web-based content for adults with ADHD and parents of children with ADHD in order to improve user experience and engagement.
Methods:
Individual interviews and focus groups identified the needs of the ADHD stakeholders related to website content and format. Interview and focus group findings were used to develop a website. Think aloud interviews evaluated website usability to inform tailoring the website based on user feedback.
Results:
Interviews and focus group findings revealed preferences for ADHD website information and content, website layout, and information sources. Themes included a preference for destigmatizing information about ADHD, information specific to patient demographics, and evidence-based information tailored for lay audiences.
Conclusions:
ADHD stakeholders are specifically seeking positive information about ADHD presented in a user-friendly format.
Citation
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Copyright
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