Accepted for/Published in: JMIR Pediatrics and Parenting
Date Submitted: Feb 16, 2023
Date Accepted: Jun 12, 2023
Needs Assessment by Caregivers of Children and Youth Living with T1D and Health Care Providers to Inform the Design of a Collaborative Patient-Centered Digital Health Platform for Pediatric Diabetes Care in British Columbia
ABSTRACT
Background:
Digital health applications are becoming increasingly available for people living with diabetes, yet data silos continue to exist. This requires healthcare providers (HCP) and patients to use multiple digital platforms to access health data.
Objective:
In this study, we gathered the perspectives of caregivers of children and youth living with type 1 diabetes (T1D) and pediatric diabetes HCP in the user-centred design of TrustSphere, a secure, single point-of-access integrative digital health platform.
Methods:
Online surveys were distributed to caregivers of children and youth living with T1D and pediatric diabetes HCP in British Columbia (BC), Canada. Surveys were designed using ordinal scales and had free-text questions. Survey items assessed key challenges, perceptions about digital trust and security, and potential desirable features for a digital diabetes platform.
Results:
Similar challenges were identified between caregivers of children and youth living with T1D (n=99) and HCP (n=49), including access to mental health support, integration of diabetes technology and device data, and the ability to collaborate on care plans with their diabetes team. Caregivers and HCP identified potential features that directly addressed their challenges, such as more accessible diabetes data and diabetes care plans. Caregivers had more trust in sharing their child’s data digitally than HCP. Most caregivers and HCP stated that an integrative platform for T1D would support collaborative patient care.
Conclusions:
Caregiver and HCP perspectives gathered in this study will inform the early prototype of an integrative digital health platform. This prototype will be presented and iterated upon via a series of usability testing sessions with caregivers and HCP to ensure the platform meets end-users’ needs.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.