Accepted for/Published in: JMIR Research Protocols
Date Submitted: Dec 12, 2022
Date Accepted: Mar 21, 2023
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Developing a system of health support for young people experiencing first episode psychosis: Protocol for a co-design process
ABSTRACT
Background:
People living with psychosis face a substantially increased risk of poor physical health and premature mortality. Encouraging positive health behaviours from an early stage is crucial to the health and well-being of this population but is often overshadowed by symptom management within early intervention services.
Objective:
This study aims to co-design a system that supports the health and well-being of young people experiencing first episode psychosis (FEP), which considers these peoples’ lived experience of psychosis within the context of early intervention services. We also aim to develop a set of principles to guide future systems to support the health and well-being of young people experiencing FEP.
Methods:
Up to 15 young people living with FEP aged 16 to 24 years who are service users of early intervention services in psychosis (EISP), their immediate support networks (family and/or friends), and health professionals involved with EISP will be invited to participate in a series of co-design workshops. Data will be collected in various forms, including expressive forms (e.g., art, spoken word) and traditional methods (interview transcription, surveys), with phenomenographic and thematic analyses being used to understand this data. The co-design process will be evaluated in terms of acceptability from the perspective of service users via rating scales and interviews. The study is sited within the Greater Wellington region in Aotearoa New Zealand. Recruitment to the study commenced in August 2022 and data collection will be completed by the end of February 2023.
Results:
The results will be used to create a system of support that can be immediately applied, and as preliminary evidence for funding and resource applications to deliver and evaluate a ‘full’ version of the co-designed system of support.
Conclusions:
The co-designed system of support and accompanying set of principles will offer a potentially impactful health and well-being intervention for young people experiencing FEP in Aotearoa New Zealand. Clinical Trial: Registered in the Australian NZ Clinical Trials Registry (ACTRN12622001323718).
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.