Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Nov 26, 2022
Date Accepted: Sep 19, 2023
Evaluation of the Needs and Experiences of Patients with Hypertriglyceridemia:Social Media Listening Research
ABSTRACT
Background:
Hypertriglyceridemia is a common lipid disorder which may lead to cardiovascular diseases,till date there are no published literature on the utility of social media listening(SML)in hypertriglyceridemia to understand patients’ cognizance and expectations pertaining to its management.
Objective:
The current study utilizes SML with an aim to explore the disease cognition level of hypertriglyceridemia patients, choice of intervention measures, status quo of online consultation and Q&A search platforms.
Methods:
An info surveillance study was conducted wherein a disease specific comprehensive search was performed between 2004 to 2020 in Q&A search platforms and online consultation platforms related to hypertriglyceridemia using the predefined single and combined keywords that include disease, symptoms, diagnosis and treatment indicators, lifestyle interventions and therapeutic agents. Further, search output was aggregated using aggregator tool and evaluated.
Results:
Out of 20 data sources (6 Q&A search, and 14 online consultation platforms), disease specific consultations data (n=69,845) and corresponding response data (n=1,11,763) were analyzed. Further, doctors from inland areas have relatively high voice volumes and exerts great influence. Hypertriglyceridemia patients on the internet have average level of cognition about the disease and its intervention measures. However, a strong demand for the concept of the disease and “how to treat it” was observed. More emphasis towards the persistence of the disease and the safety of medication was observed. Young patients have a lower willingness for drug interventions whereas patients with a severe hypertriglyceridemia have a clearer intention to use drug intervention and few patients have a strong willingness for the use of traditional Chinese medicine.
Conclusions:
Findings from this disease specific SML study revealed that patients with hypertriglyceridemia actively seek information from both the Q&A search and online consultation platforms. Further, the insights derived from the current approach have the potential to complement more traditional approaches.
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