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Brew-Sam N, Parkinson A, Chhabra M, Henschke A, Brown E, Pedley L, Pedley E, Hannan K, Brown K, Wright K, Phillips C, Tricoli A, Nolan CJ, Suominen H, Desborough J
Toward Diabetes Device Development That Is Mindful to the Needs of Young People Living With Type 1 Diabetes: A Data- and Theory-Driven Qualitative Study
Towards diabetes device development that is mindful to the needs of young people living with type 1 diabetes: a data and theory driven qualitative study
Nicola Brew-Sam;
Anne Parkinson;
Madhur Chhabra;
Adam Henschke;
Ellen Brown;
Lachlan Pedley;
Elizabeth Pedley;
Kristal Hannan;
Karen Brown;
Kristine Wright;
Christine Phillips;
Antonio Tricoli;
Christopher J Nolan;
Hanna Suominen;
Jane Desborough
ABSTRACT
Background:
An important strategy to understand young people’s needs regarding technologies for Type 1 Diabetes Mellitus (T1DM) management is to examine their day-to-day experiences with these technologies.
Objective:
This study aimed to 1) describe young people's and their caregivers' experiences regarding diabetes technologies in an exploratory way and to 2) relate the findings to existing technology acceptance and technology design theory. Based on this procedure, we aimed to 3) develop device characteristics that meet young people's needs.
Methods:
Sixteen face-to-face interviews were conducted with young people with T1DM and their parents. Data-driven thematic analysis prior to theory-driven analysis was used to incorporate empirical data results with the Unified Theory of Acceptance and Use of Technology (UTAUT) and Value Sensitive Design (VSD). We summarized key device characteristics meeting young people's needs.
Results:
Interview themes included aspects of self-management, device use, technological characteristics, and feelings associated with device types. The interview data aligned with all UTAUT and VSD factors except for one (privacy). Discussions around ideal device characteristics focused on reliability, flexibility, and automated closed loop systems that enabled an independent life for young people and alleviated parental anxiety.
Conclusions:
Our research highlights the benefits of transdisciplinary use of exploratory and theory-informed methods to design improved technologies.
Citation
Please cite as:
Brew-Sam N, Parkinson A, Chhabra M, Henschke A, Brown E, Pedley L, Pedley E, Hannan K, Brown K, Wright K, Phillips C, Tricoli A, Nolan CJ, Suominen H, Desborough J
Toward Diabetes Device Development That Is Mindful to the Needs of Young People Living With Type 1 Diabetes: A Data- and Theory-Driven Qualitative Study