Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Aug 17, 2022
Date Accepted: Mar 15, 2023
‘See Me’: Older Indigenous women want the digital health revolution to include them: Systematic Review
ABSTRACT
Background:
Research associated with digital health technologies similar to the technologies themselves has proliferated in the last two decades. There are calls for these technologies to provide cost-effective health care for underserved populations. However, the research community has also underserved many of these populations. Older Indigenous women are one such segment of the population.
Objective:
Our objective is to systematically review the literature to consolidate and document what we know about how older Indigenous women living in high-income countries use digital health technology to enhance health
Methods:
We analysed the peer-reviewed literature by systematically searching eight databases in March of 2022. We included studies published between January 2005 and March 2022 with original data specific to older Indigenous women from high-income countries that reported on the effectiveness, acceptability, and usability of some type of user-focused digital health technology. We incorporated two measures of quality for each study. We also conducted a thematic analysis and a Lived Experience Analysis (LEA), which examined each paper from the perspectives of older Indigenous women. We followed the PRISMA guidelines (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement in this study.
Results:
Three papers met the inclusion criteria. The key findings were that older Indigenous women do not see themselves reflected in the mainstream health messaging or other digital health offerings. They prefer an approach that considers their uniqueness and diversity. We also identified two significant gaps in the literature. First, research reporting on older Indigenous women from high-income countries' experiences with digital health technology is minimal. Second, the limited research related to older Indigenous women has not consistently engaged Indigenous people in the research process or governance.
Conclusions:
Older Indigenous women want digital health technologies to respond to their needs and preferences. Research is needed to understand their requirements and preferences to ensure equity as we move to greater adoption of digital health technology. Engaging older Indigenous women throughout the research is essential to ensure that digital health products and services are safe, usable, effective and acceptable for older Indigenous women.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.