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Delmonaco D, Li S, Paneda C, Popoff E, Hughson L, Jadwin-Cakmak L, Alferio J, Stephenson C, Henry A, Powdhar K, Gierlinger I, Harper GW, Haimson OL
Community-Engaged Participatory Methods to Address Lesbian, Gay, Bisexual, Transgender, Queer, and Questioning Young People’s Health Information Needs With a Resource Website: Participatory Design and Development Study
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Community-Engaged Participatory Design and Development of an LGBTQ+ Health Resource Website: Design Considerations for LGBTQ+ Young People’s Health Information Needs
Daniel Delmonaco;
Shannon Li;
Christian Paneda;
Elliot Popoff;
Luna Hughson;
Laura Jadwin-Cakmak;
Jack Alferio;
Christian Stephenson;
Angelique Henry;
Kiandra Powdhar;
Isabella Gierlinger;
Gary W. Harper;
Oliver L. Haimson
ABSTRACT
Background:
Lesbian, gay, bisexual, transgender, and queer and/or questioning (LGBTQ+) young people (ages 15 to 25) face unique health challenges and often lack resources to adequately address their health information needs related to gender and sexuality.
Objective:
The objective of our study was to work with a community partner to develop an inclusive and comprehensive new website to address LGBTQ+ young people's health information needs.
Methods:
We conducted interviews (n = 17) and design sessions (n = 11) (total individual participants n = 25) with LGBTQ+ young people to understand their health information needs and elicit design recommendations for the new website.
Results:
We present participants’ desired resources, health topics, and technical website features that can facilitate information seeking for LGBTQ+ young people exploring their sexuality and gender and looking for health resources. We describe how filters can allow people to find information related to intersecting marginalized identities, and how dark mode can be a privacy measure to avoid unwanted identity disclosure. We reflect on our design process and situate the website development in previous critical reflections on participatory research with marginalized communities.
Conclusions:
Meaningful collaboration with community partners throughout the design process is vital for developing technological resources that meet community needs. We argue for community partner leadership, rather than just involvement, in community-based research endeavors at the intersection of human-computer interaction and health.
Citation
Please cite as:
Delmonaco D, Li S, Paneda C, Popoff E, Hughson L, Jadwin-Cakmak L, Alferio J, Stephenson C, Henry A, Powdhar K, Gierlinger I, Harper GW, Haimson OL
Community-Engaged Participatory Methods to Address Lesbian, Gay, Bisexual, Transgender, Queer, and Questioning Young People’s Health Information Needs With a Resource Website: Participatory Design and Development Study