Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.
Who will be affected?
Readers: No access to all 28 journals. We recommend accessing our articles via PubMed Central
Authors: No access to the submission form or your user account.
Reviewers: No access to your user account. Please download manuscripts you are reviewing for offline reading before Wednesday, July 01, 2020 at 7:00 PM.
Editors: No access to your user account to assign reviewers or make decisions.
Copyeditors: No access to user account. Please download manuscripts you are copyediting before Wednesday, July 01, 2020 at 7:00 PM.
Clinical perspectives on using remote measurement technology in epilepsy, multiple sclerosis and depression: A Delphi study
Jacob Andrews;
Michael P Craven;
Boliang Guo;
Janice Weyer;
Simon Lees;
Spyridon I Zormpas;
Sarah E Thorpe;
Julie Devonshire;
Victoria San Antonio-Arce;
William P Whitehouse;
Jessica Julie;
Sam Malins;
Alexander Hammers;
Andreas Reif;
Henricus G Ruhe;
Federico Durbano;
Stefano Barlati;
Arjune Sen;
Jette L Frederiksen;
Alessandra Martinelli;
Antonio Callen;
Joan Torras-Borrell;
Nuria Berrocal-Izquierdo;
Ana Zabalza;
Richard Morriss;
Chris Hollia;
The RADAR-CNS Consortium
ABSTRACT
Background:
Multiple sclerosis, epilepsy and depression are chronic central nervous system (CNS) conditions where remote measurement technology (RMT) may offer benefits compared to the usual assessment of symptoms. We previously worked with clinicians, patients and researchers to develop 13 use cases for remote measurement technology in these conditions.
Objective:
In the present study, we used a Delphi exercise to evaluate these use cases with an expert panel of clinicians from across Europe who were external to the project consortium.
Methods:
The study had two survey rounds (n=23, n=17) and a follow-up interview round (n=9). Data were analysed for consensus between participants, and for stability between survey rounds. Interviews explored reasons for answers given in the survey.
Results:
Findings showed good stability between rounds on questions related to specific use cases, but less stability on questions relating to wider issues around the implementation of RMT. Questions on wider issues also had less consensus overall. All five use cases for epilepsy were considered beneficial, with consensus among participants at above the a priori threshold for most questions, although use case 3 (risk scoring) was considered less likely to facilitate or catalyse care. There was very little consensus on the benefits of the use cases in MS, though this may result from higher dropout of MS clinicians in the study (50%). Participants agreed that there would be benefits for all five of the depression use cases, although a smaller number of questions (4/7) reached consensus for depression use case 4 (comorbid monitoring), and use case 5 (carer alert) was critiqued in the interviews. The qualitative analysis revealed further insights on each use case and generated eight themes on practical issues relating to implementation.
Conclusions:
Overall, these findings inform the prioritisation of use cases to develop in future work, which may include clinical trials, cost-effectiveness studies and the commercial development of RMT products and services. Findings also offer understandings on how remote measurement technologies could be successfully implemented in clinical care.
Citation
Please cite as:
Andrews J, Craven MP, Guo B, Weyer J, Lees S, Zormpas SI, Thorpe SE, Devonshire J, San Antonio-Arce V, Whitehouse WP, Julie J, Malins S, Hammers A, Reif A, Ruhe HG, Durbano F, Barlati S, Sen A, Frederiksen JL, Martinelli A, Callen A, Torras-Borrell J, Berrocal-Izquierdo N, Zabalza A, Morriss R, Hollia C, The RADAR-CNS Consortium
Clinical Perspectives on Using Remote Measurement Technology in Assessing Epilepsy, Multiple Sclerosis, and Depression: Delphi Study