Accepted for/Published in: JMIR Human Factors
Date Submitted: Jul 18, 2022
Date Accepted: Apr 13, 2023
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Usability, Acceptability, and Preliminary Effectiveness of a Peer-delivered and Technology Supported Mental Health Intervention for Family Caregivers of People with Dementia
ABSTRACT
Background:
Family caregivers of people with dementia are critical to the quality of life of care recipients and the sustainability of healthcare systems but face increased risk of emotional distress and negative physical and mental health outcomes.
Objective:
The purpose of this study was to examine the usability, acceptability, and preliminary effectiveness of a technology-based and caregiver-delivered peer support program, “Caregiver Remote Education and Support” (CARES) smartphone/tablet application and to identify barriers and facilitators to the ethical use of former caregivers as technology-based interventionists.
Methods:
Nine family caregivers of people with dementia aged 18 and older received the CARES intervention and three former family caregivers of people with dementia were trained to deliver the CARES system. Quantitative data were collected at baseline and at the end of the two-week field usability study. Qualitative data were also collected at the end of the two-week field usability study.
Results:
The pilot study demonstrated that a two-week, peer-delivered and technology supported mental health intervention designed to improve burden, stress, and strain levels was experienced by former and current family caregivers of people with dementia as usable, acceptable, and ethical. CARES was associated with non-statistically significant improvements in burden, stress, and strain levels.
Conclusions:
This pre/post field usability study demonstrated it is possible to train former family caregivers of people with dementia to use technology to deliver a mental health intervention to current family caregivers of people with dementia. Future studies would benefit from a longer trial, a larger sample size, a randomized controlled design, and a control of covariables such as stages of dementia, years providing care, and the severity of dementia symptoms.
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