JMIR Publications

ABSTRACT

Background:

Cancer is a major global health problem. Patient-reported outcome (PRO) systems have been developed to support the treatment of cancer patients. Although clear evidence of the benefits of the routine use of electronic Patient-reported outcomes (ePROs) exists, engaging physicians in using these systems has been challenging.

Objective:

This study aims to identify and analyze what is currently known about healthcare professionals’ (HCPs) perceived barriers and facilitators that exist and influence the use of ePRO systems for cancer care.

Methods:

We carried out a systematic mapping study by conducting searches of three databases (ACM, PubMed, and Scopus). Eligible papers were published between 2010 and 2021, and they described HCPs’ perspectives on using ePROs. The data on the included papers were extracted, a thematic meta-synthesis was performed, and seven themes were summarized into three categories.

Results:

A total of 17 papers were included in the study. The HCPs perceived barriers and facilitators of using ePROs can be summarized into seven themes: clinical workflow, organization and infrastructure, value to patients, value to healthcare professionals, digital health literacy, usability, and data visualization and perceived features. These themes can be further summarized into three categories: work environment, value to users, and suggested features. According to the study, ePRO should be interoperable with hospital electronic health records (EHR) and adapted to the hospital workflow. HCPs’ should get appropriate support for the use. Additional features are needed for ePROs, and special attention should be paid to data visualization. Patients should have the option to use ePRO online at home and complete it at the time most valuable to the treatment. Patients’ ePRO notes need attention during clinical visits but ePRO use should not limit patient-clinician face-to-face communication.

Conclusions:

The study revealed that several aspects need improvement in ePROs and their operating environments. By improving these aspects, HCPs' experience with ePROs will enhance, and thus there will be more facilitating factors for HCPs to use ePROs than today. More national and international knowledge about using ePROs is still needed to cover the need for information to develop them and their operating environments to meet the needs of HCPs.