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Accepted for/Published in: JMIR Human Factors

Date Submitted: Jul 6, 2022
Date Accepted: Oct 6, 2022
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study

Lee AR, Csipke E, Yates L, Moniz-Cook E, McDermott O, Taylor S, Stephens M, Kelleher D, Orrell M

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study

JMIR Hum Factors 2023;10:e40785

DOI: 10.2196/40785

PMID: 36826978

PMCID: 10007001

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Development of the web-based PRIDE self-management app

  • Abigail Rebecca Lee; 
  • Emese Csipke; 
  • Lauren Yates; 
  • Esme Moniz-Cook; 
  • Orii McDermott; 
  • Steven Taylor; 
  • Michael Stephens; 
  • Daniel Kelleher; 
  • Martin Orrell

ABSTRACT

Background:

Self-management, autonomy and quality of life are key constructs in enabling people to live well with dementia. This population often become isolated following diagnosis, but it is important for them to feel encouraged to maintain their daily activities and stay socially active. PRIDE promotes social inclusion and greater dementia self-management via an interactive handbook.

Objective:

This paper will discuss the development of the paper-based PRIDE manual into a web-based platform.

Methods:

There were two overarching stages to creating the web-based version of PRIDE. The first was Preliminary Development which encompassed; (1) tendering, (2) preliminary development work, (3) consultations, (4) beta version of the website, (5) user testing/consultation on beta version, and (6) production of final web-based prototype. The second stage was Development of the Final PRIDE-app, which included two sprints and further user-testing.

Results:

Through a lengthy development process, modifications were made to app areas such as the login process, content layout and aesthetical appearance. Feedback from the target population was incorporated throughout the process to achieve a dementia-friendly product. The finished PRIDE-app has defined areas for reading up on dementia-related topics, creating activity plans, and logging these completed activities.

Conclusions:

Through the work discussed, the PRIDE-app has evolved from its initial prototype into a more dementia-friendly and usable program that is of a standard for wider testing. The finished version will be trialed in a RE-AIM study, with its potential reach, effectiveness and adoption explored. Feedback gathered during the RE-AIM study will go towards any further developments to the app to increase its applicability to the target audience and usability.


 Citation

Please cite as:

Lee AR, Csipke E, Yates L, Moniz-Cook E, McDermott O, Taylor S, Stephens M, Kelleher D, Orrell M

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study

JMIR Hum Factors 2023;10:e40785

DOI: 10.2196/40785

PMID: 36826978

PMCID: 10007001

Per the author's request the PDF is not available.