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Accepted for/Published in: JMIR Formative Research

Date Submitted: Jun 1, 2022
Open Peer Review Period: Jun 1, 2022 - Jul 27, 2022
Date Accepted: Dec 12, 2022
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

To Act or Not to Act—a Sense of Control Is Important for People With Chronic Obstructive Pulmonary Disease to Increase Physical Activity: Grounded Theory Study

Marklund S, Sörlin A, Stenlund T, Wadell K, Nyberg A

To Act or Not to Act—a Sense of Control Is Important for People With Chronic Obstructive Pulmonary Disease to Increase Physical Activity: Grounded Theory Study

JMIR Form Res 2023;7:e39969

DOI: 10.2196/39969

PMID: 36735302

PMCID: 9938439

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

To act, or not to act – a sense of control is important for people with COPD. A Grounded Theory Study.

  • Sarah Marklund; 
  • Ann Sörlin; 
  • Tobias Stenlund; 
  • Karin Wadell; 
  • Andre Nyberg

ABSTRACT

Background:

Among people with chronic obstructive pulmonary disease (COPD), low levels of daily physical activity (PA) are the main risk factors for developing cardiovascular, metabolic, and musculoskeletal comorbidities. Increasing PA in people with COPD is as complex as PA behavior is complex and multi-faceted, including personal, physiological, and psychological elements as well as social and environmental factors. Even though electronic health (eHealth) solutions such as web-based support or interactive websites have shown positive effects on PA in people with COPD, results are inconclusive and it is still unclear how eHealth solutions might be used to support positive change in PA behavior in people with COPD.

Objective:

The study aimed to explore the perceptions of increasing objective PA when using a web-based eHealth tool among people with COPD.

Methods:

The current study was part of a pragmatic randomized controlled trial (RCT), with in-depth interviews between the 3- and 12-month follow-ups. The methodology used was constructivist Grounded Theory. All sampling included RCT intervention group participants who had access to the eHealth tool in question and accepted being contacted regarding an in-depth interview. Inclusion of participants continued until data saturation was reached, resulting in an inclusion of 14 participants (8 women) between the ages of 49 to 84, living in eight municipalities in the Middle and Northern Sweden. Two interviews were conducted face-to-face, and the rest of the interviews were conducted via telephone. All of the interviews were recorded using a Dictaphone.

Results:

The analysis resulted in three main categories, Welcoming or not welcoming action, Having or lacking resources, and Lowering the threshold. The first two contain barriers and facilitators, while the third contains only facilitators. The categories lead to the more latent theme of Perceiving enough control to enable action, meaning that it seems that perceiving the “right” amount of control is essential to maintain or increase the level of PA when using an eHealth tool among patients with COPD. However, what the right amount of control was seemed to depend on the individual (and context) in question.

Conclusions:

The core category indicates that a need for a certain sense of control was interpreted as necessary for increasing the PA level as well as for using an eHealth tool to help increase the PA level. The eHealth tool seemed to strengthen or weaken the perception of control by either providing support or being too demanding on the user. Perceptions varied depending on other factors in the environment. The Fogg Behavior Model illustrated how motivational levels, ability levels, and functional triggers interact within our findings. Thus, this study shows further evidence for the importance of empowering the patients to boost their level of agency and their ability to improve PA levels. Clinical Trial: ClinicalTrials.gov identifier: NCT03746873. Ethical approval was given by the Regional Ethical Board, Umeå University, Umeå, Sweden (Dnr: 2018-274-31 plus amendment Dnr: 2019-05572).


 Citation

Please cite as:

Marklund S, Sörlin A, Stenlund T, Wadell K, Nyberg A

To Act or Not to Act—a Sense of Control Is Important for People With Chronic Obstructive Pulmonary Disease to Increase Physical Activity: Grounded Theory Study

JMIR Form Res 2023;7:e39969

DOI: 10.2196/39969

PMID: 36735302

PMCID: 9938439

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