Accepted for/Published in: JMIR Medical Informatics
Date Submitted: May 2, 2022
Open Peer Review Period: Apr 29, 2022 - Jun 24, 2022
Date Accepted: Jun 21, 2022
(closed for review but you can still tweet)
The Power of Patient Engagement with Electronic Health Records as Research Participants
ABSTRACT
Electronic health record (EHR) technology has become a central digital health tool throughout health care. EHR systems are responsible for a growing number of vital functions for hospitals and providers. More recently, patient-facing EHR tools are allowing patients to interact with their EHR and connect external sources of health data such as from wearable fitness trackers, personal genomics, and outside health services. As patients become more engaged with their EHR, the volume and variety of digital health information will serve an increasingly useful role in health care and health research. Particularly due to the Covid-19 pandemic, the ability for the biomedical research community to pivot to fully remote research, driven in large part by EHR data capture and other digital health tools, is an exciting development that can significantly reduce burden on study participants, improve diversity in clinical research, and equip researchers with more robust clinical data. In this article we describe how patient engagement with EHR technology is poised to advance the digital clinical trial space, an innovative research model that is uniquely accessible and inclusive for study participants.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.