Accepted for/Published in: JMIR Formative Research
Date Submitted: Jan 19, 2022
Date Accepted: Feb 28, 2022
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Adapting child health knowledge translation tools for Somali parents: a qualitative study exploring process considerations and stakeholder engagement
ABSTRACT
Background:
We have developed a series of knowledge translation (KT) tools which integrates parental experiences to communicate evidence-based information about acute childhood health conditions to parents and caregivers. While we created these tools with parent input, it is unclear if they are useful for diverse parent groups, including specific immigrant and refugee groups in Canada.
Objective:
Our objective was to explore the usefulness of our pre-existing KT tools within our local Somali community, and understand what cultural and linguistic adaptations could improve their usability.
Methods:
After viewing four KT tools (differing in design and format) about various acute child health conditions, healthcare providers (HCPs) and knowledge brokers (KBs) who work with Somali families were interviewed about the usability of these tools and discussed considerations for adapting KT tools for use within the Somali community.
Results:
Thirteen HCPs and KBs who participated indicated that the Somali community values accessibility, representation, and the role of trusted others in delivering effective KT products. Understanding accessibility barriers, the power of adequate representation, and engaging meaningfully with prominent community leaders were key suggestions for ensuring relevance of KT products and uptake by community members.
Conclusions:
When developing KT tools or adapting pre-existing KT tools for diverse communities, researchers should consider the community’s needs and perspectives upfront. This study represents an essential piece of understanding processes for adapting KT products for culturally and linguistically diverse communities.
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